In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particularly POTS, emphasizing the importance of validating symptoms, the struggles of navigating multiple diagnoses, and the crucial role of community and support. The conversation also highlights the increase in diagnoses of ADHD, OCD, and anxiety, especially post-COVID, and provides advice for parents on advocating for their children's health. Tune in for valuable insights on managing chronic illnesses and mental health holistically.
00:00 Introduction to the POTS Life Podcast
00:23 Meet Our Guest: Ashley Schuetz, CRNP
00:59 Ashley's Journey into Nursing
02:55 Mental Health and COVID-19
04:45 Challenges in Diagnosing Chronic Illnesses
06:53 Supporting Children with Chronic Illnesses
08:09 The Importance of Validation and Advocacy
10:54 Navigating the Medical System
16:39 The Role of Community and Support
19:30 Post-COVID Mental Health Trends
21:41 Understanding OCD and ADHD Symptoms
22:21 The Importance of Treating Symptoms, Not Diagnoses
22:44 The Impact of Mental Health on Daily Life
23:36 The Role of Therapy and Medication
25:24 Breaking the Stigma Around Mental Health
26:30 The Necessity of Mental Health Professionals
28:07 The Benefits of Comprehensive Care
31:08 Specialized Care for Students
33:47 Raising Awareness About POTS
35:19 Final Thoughts and Contact Information
Connect with Ashley:
Ashley Schuetz, CRNP | Fine Tune Psychiatry
Psychiatric Care for Children, Teens & Adults | Fine Tune Psychiatry
Connect with Us:
Facebook: The POTS Life
Instagram: @thepotslife_
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In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its importance in diagnosing POTS. The discussion also covers personal experiences with the test, how to prepare for it, and tips for managing the aftereffects. Listeners are advised on how to navigate the healthcare system to get a proper diagnosis and the importance of finding the right medical team for ongoing support.
00:00 Introduction to the POTS Life Podcast
00:34 Understanding the Tilt Table Test
01:01 Preparing for the Tilt Table Test
05:23 Experiencing the Tilt Table Test
10:57 Post-Test Reactions and Advice
15:09 Alternative Diagnosis Methods
18:44 Living with POTS: Next Steps
21:56 Conclusion and Support
Connect with us!
Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife
Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the significance of self-care and flexibility during this festive yet chaotic time. Join us for practical advice to keep your POTS symptoms at bay and learn about our supportive POTS Life Program to start the new year strong.00:00 Welcome to the POTS Life Holiday Edition00:35 Managing Holiday Stress with POTS01:08 Maintaining Routines and Exercise02:21 Importance of Hydration and Nutrition05:07 Grace and Flexibility During the Holidays05:41 Join the POTS Life Program in the New Year06:45 Conclusion and Holiday Wishes
Connect with us!
Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife
In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and numerous doctor visits before finding the POTS Life program.
Lindsey discusses her initial skepticism, the challenges, and the support she found within the community. She emphasizes the importance of consistency, even when feeling unwell, and shares the progress she made through the program. Offering hope and encouragement, Lindsey's story highlights the potential for improvement and a changed perspective on life after managing POTS.00:00 Introduction and Welcome00:23 Meet Lindsey: A POTS Life Graduate01:41 Lindsey's Journey to Diagnosis04:09 Life Before and After POTS Diagnosis08:26 The POTS Life Program Experience12:52 Overcoming Setbacks and Finding Support18:56 Advice for Newcomers and Final Thoughts23:20 Conclusion and Farewell
Connect with us: thepotslife.com
Facebook: The POTS Life
Instagram: @thepotslife_
Tik Tok: thepotslife
In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS).
The episode highlights why excessive rest can be detrimental and provides practical tips for gradually increasing activity levels. They share real-life examples of patients who have improved their conditions by incorporating small, structured movements and making lifestyle adjustments. Emphasizing the need for personalized approaches, the hosts offer advice on how to rest effectively, manage fatigue, and integrate gradual physical activity to improve overall well-being.00:00 Introduction to the POTS Life Podcast00:24 The Importance of Rest01:58 Understanding Fatigue in POTS03:16 Personal Stories and Progress04:41 Tips for Managing POTS07:14 The Role of Sleep and Napping14:40 Small Steps to Improvement19:39 Final Thoughts and Encouragement20:00 Closing Remarks
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Instagram: @thepotslife_
www.thepotslife.com
In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing essentials, hydration strategies, handling stress and adrenaline, and ensuring you stay on track with your health routines.
Whether you're a first-time traveler or a Disney regular, these tips aim to help you make the most of your trip without sacrificing your wellbeing.
00:00 Introduction to the POTS Life Podcast
00:32 Preparing for a Disney Trip with POTS
02:36 Managing Symptoms and Enjoying Disney
03:28 Travel Tips and Personal Experiences
04:48 Packing and Hydration Strategies
09:12 Navigating Disney with POTS13:15 Rides and Sensory Experiences
15:20 Discussing Ride Preferences and Disney Experiences
16:31 Tips for Staying Hydrated at Disney
17:14 Importance of Regular Meals and Snacks
18:15 Managing Exercise and Activity Levels1
9:43 The Value of a Buffer Day After Vacation
24:30 Encouragement to Travel Despite Health Concerns
26:51 Final Thoughts and Encouragement
In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They also highlight the need for moderation, especially when it comes to alcohol, and the value of communicating your needs with family. The episode emphasizes enjoying the moment, not striving for perfection, and giving yourself grace if things don't go as planned.00:00 Introduction and Welcome00:27 Navigating Holiday Stress01:27 Thanksgiving Tips and Tricks01:46 Moderation and Nutrition05:02 Hydration and Sensory Overload05:56 Alcohol and Socializing08:29 Exercise and Routine10:04 Final Thoughts and Encouragement11:09 Conclusion and Farewell
Connect with us: The POTS Life
Instagram: @thepotslife_
Facebook & Tik Tok: The POTS Life | thepotslife
In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also discuss how the program can be customized to meet various needs, answer common questions about modifications, and emphasize the importance of adapting the plan to individual circumstances. Whether you're a seasoned athlete or just beginning your journey with POTS, this episode provides valuable insights and encouragement for managing the condition effectively.
00:00 Introduction to the POTS Life Podcast
00:25 Understanding the Importance of Recumbent Exercise
01:11 Challenges and Misconceptions in POTS Treatment
05:49 The Role of Biking in POTS Recovery
10:44 Customizing Your POTS Life Program
16:39 Conclusion and How to Get Started
Connect with The POTS Life
Website: www.thepotslife.com
Instagram: @thepotslife_
Facebook & TikTok: The POTS Life
In this episode of Let’s Talk About The POTS Life, host Dr. Kelsey Botti and Britney sit down with Dr. Erin Nance, an orthopedic hand surgeon based in New York City, better known to her close to 1M followers as @littlemissdiagnosed.
Dr. Nance shares how her personal journey with chronic illness inspired her to raise awareness about commonly misunderstood and misdiagnosed conditions—including POTS (Postural Orthostatic Tachycardia Syndrome). Together, they unpack what it’s like to navigate the medical system as both a physician and a patient, the emotional stages of misdiagnosis, and how empowering patients with credible information can change the future of chronic illness care.
They also explore FeelBetr, Dr. Nance’s new digital platform connecting patients with reliable, physician-approved health information and community support.
Tune in for an honest, uplifting, and informative conversation about the intersection of patient advocacy, medical education, and the power of social media in reshaping chronic illness awareness.
00:00 Introduction and Welcome
00:24 Meet Dr. Erin Nance
01:02 The Power of Social Media in Diagnosis
02:28 The Importance of Patient Experience
03:53 Challenges in Diagnosing POTS
06:32 Understanding Perimenopause and Menopause
08:34 The Role of Health Literacy
14:05 The Emotional Journey of Misdiagnosis
18:20 The Need for Credible Health Information
20:49 Introducing the Feel Better App
24:03 The Power of Short-Form Content
24:33 Creating a Space for Conversation
25:38 The Role of Social Media in Medical Information
26:20 Going Viral with Engaging Content
28:41 Combating Medical Misinformation
31:13 The Importance of Patient Stories
34:39 Challenges in Diagnosing Complex Conditions
41:33 Conclusion and Final Thoughts
Connect with Dr. Erin Nance
Instagram & TikTok: @littlemissdiagnosed
Website: https://www.nancemd.com
App: FeelBetr -- https://www.feelbetr.health/
Connect with The POTS Life
Website: www.thepotslife.com
Instagram: @thepotslife_
Facebook & TikTok: The POTS Life
In this episode of Let’s Talk About The POTS Life, we sit down with Megan, a nurse and recent POTS Life graduate, to trace her path from years of confusing symptoms and misdiagnoses to clarity, structure, and sustainable progress. Megan shares what it was like to “look fine” on the outside while battling debilitating episodes after routine workouts, how she rebuilt with a low-and-slow plan, and the mindset shifts that helped her reclaim daily life. If you’re newly diagnosed or feel stuck, this one’s for you.
Timestamps
00:00 Introduction to the POTS Life Podcast
00:24 Meet Megan: A New POTS Life Graduate
01:17 Megan’s Journey: From Symptoms to Diagnosis
04:18 The Struggles of Living with POTS
09:15 Adjusting to a New Normal
14:54 Small Wins and Progress
19:11 The Slow Transition to Real Exercises
20:08 Balancing Activity Levels
21:06 The Importance of Consistency
22:04 Managing Health Challenges
23:19 Adapting to Lifestyle Changes
24:11 Overcoming Setbacks
27:13 Advice for the Newly Diagnosed
30:27 Small Business Shoutout
32:58 The Value of Personal Experience
33:42 Conclusion and Farewell
Resources & Connect
Visit: www.thepotslife.com
IG: @thepotslife_
Facebook & TikTok: The POTS Life
Guest: @412fertility
In this episode of 'Let's Talk about the POTS Life,' we welcome Nicole, a POTS Life graduate nearing her one-year post-grad anniversary. Nicole shares her journey, from her initial misdiagnosis and struggles through visits to multiple specialists to her eventual POTS diagnosis. She highlights the role of her mom in finding the right treatment and her gradual improvement through physical therapy. The discussion delves into the impact of long COVID, the challenges of managing POTS, and the significance of consistent treatments like biking and electrolytes. Nicole's story is an inspiring testament to perseverance and the effectiveness of the POTS Life program, offering hope and guidance for others on similar paths.
00:00 Introduction and Welcome
00:29 Nicole's Journey with POTS
01:09 Diagnosis and Initial Struggles
01:44 Finding the Right Treatment
03:37 Living with POTS: Challenges and Progress
03:59 The Impact of COVID-19
04:29 Family History and Early Symptoms
07:06 Treatment Experiences and Adjustments
09:23 Signs of Improvement
12:15 Ongoing Challenges and Mental Resilience
15:23 Seasonal Triggers and Symptom Management
15:58 Joining the POTS Life Graduate Program
16:15 Maintaining Accountability and Exercise Routine
17:10 Transitioning to the Treadmill
18:56 Hydration and Electrolyte Intake
20:32 Living with POTS: Social Life and Challenges
23:44 Advice for New POTS Life Members
25:05 Reflecting on the Journey and Future Outlook
26:45 Conclusion and Podcast Sign-Off
Visit: www.thepotslife.com
Follow us on Instagram @thepotslife_ | Facebook & TikTok @ The POTS Life
Welcome to Season 2 of Let's Talk About The POTS Life! In this episode, Kelsey and Brit unpack the “October Slide” — that seasonal dip so many POTS patients feel as temperatures shift. They share personal experiences and practical tools to help you manage symptoms during this time, from hydration and gentle exercise to self-compassion and realistic expectations.
Tune in to hear how they navigate one of the toughest months of the year for POTS patients, plus simple ways to stay consistent through weather changes and the busy fall season.
Mentioned in this episode:
Trioral Electrolytes – @trioralelectrolytes
LMNT Electrolytes – @drinklmnt | drinklmnt.com
ORO Heated Gear – Amazon | @oroheatedapparel
Visit: www.thepotslife.com
Follow us on Instagram @thepotslife_ | Facebook & TikTok @ The POTS Life
In this episode, the hosts of 'Let's Talk about the POTS Life' celebrate their podcast's first anniversary. They reflect on their journey, highlighting technical lessons learned, the variety of guests they've had including professional athletes, healthcare providers, and POTS graduates + the feedback from their global audience. They share inspiring stories of resilience and achievements from their guests, discuss the sense of community fostered by the podcast, and provide a glimpse into what listeners can expect in the upcoming season. The episode ends with an invitation for listeners to subscribe and join them for more inspiring content in season two.00:00 Welcome to Let's Talk About the POTS Life
00:23 Reflecting on Our First Year
00:51 Unexpected Growth and Global Reach
01:17 Highlighting Our Special Guests
02:26 Inspiring Stories of Overcoming POTS
04:52 Community Support and Connections
06:29 Looking Forward to Season Two
06:50 Upgrades and Future Plans
07:12 Join Us for Season Two
Visit: www.thepotslife.com
Follow us on social media:
Instagram — @thepotslife_
Facebook — The POTS Life
TikTok — thepotslife
In this episode of 'Let's Talk about the POTS Life,' the podcast dedicated to navigating life with Postural Orthostatic Tachycardia Syndrome (POTS), the hosts welcome special guest Nicole, a professional dancer and childcare director from the Bay Area. Nicole shares her story of being diagnosed with POTS in 2021, describing her symptoms, the process of getting diagnosed, and the impact of the condition on her active lifestyle. She discusses her experiences as a professional dancer with a local football team and as a childcare center director, emphasizing the challenges and strategies she employs to manage her condition. Nicole opens up about her decision to use social media platforms like TikTok to raise awareness about POTS, the importance of being one's own advocate, and the value of creating a supportive community. The conversation highlights Nicole's resilience and determination to continue pursuing her passions despite the hurdles posed by POTS
In this episode of "Let's Talk About the POTS Life", professional footballer Sophie Hillyerd shares her journey of living and playing with Postural Orthostatic Tachycardia Syndrome (POTS). Sophie, who plays with the London City Lionesses, discusses the challenges she faced following her diagnosis in 2021 after experiencing symptoms post-COVID. She describes her path from recognizing something was wrong, undergoing extensive medical tests, and finding a management plan with the help of specialists. Sophie talks about the impact of POTS on her football career, the adaptations she made, and her determination to continue playing. The conversation encapsulates her resilience and the support she received, offering hope and practical advice to others navigating similar experiences. Sophie’s story is a remarkable testament to overcoming physical and mental hurdles to achieve one's dreams.
In this episode of 'Let's Talk About the POTS Life,' hosts Kelsey and Britney welcome adaptive golfer and US Adaptive Open Champion Bailey Bish. Bailey shares her journey from a high school basketball player to becoming an adaptive golf champion despite being diagnosed with multiple health conditions, including POTS and dystonia. Bailey discusses her transition to golf, the challenges she faced, her treatment regimen, and the supportive role of her family. Additionally, she highlights her victories and the upcoming Phoenix Cup, illustrating her determination and inspiring journey. The hosts also touch on the emotional and physical hurdles faced by those with chronic illness, emphasizing the importance of finding motivation and a supportive community.
In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the personal experiences and valuable insights that Kelsey wishes she had known at the time of her Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis. They discuss the long and often frustrating journey towards diagnosis, the importance of tracking symptoms, and the essential role of the right kind of exercise in recovery. The episode highlights the bumpy road of treatment, the potential need for medications, and the importance of having a supportive community. The discussion also covers the launch of new consultation visits designed to help individuals better understand and manage their symptoms.
In this episode of 'Let's Talk About the POTS Life,' we welcome Olivia, a POTS patient and social media influencer based in Chicago. Olivia shares her journey from the sudden onset of her symptoms, through her diagnosis, and her struggles with treatment and setbacks. She discusses the challenges of navigating daily life and her progress in managing POTS through personalized care and support. Olivia highlights the importance of staying hopeful, the impacts of maintaining a positive attitude, and the significance of having a supportive community. Tune in to hear Olivia's experiences, insights, and encouraging words for others battling POTS.
Olivia's Instagram: @livwelleatwell
Blog: https://livwelleatwell.com/
Check out our website: https://thepotslife.com/
In this special episode of 'Let's Talk about the POTS Life,' host Kelsey Botti welcomes her 8-year-old son, Carson, as the youngest guest ever. Carson shares his thoughts on his mom's job treating POTS, talks about his favorite activities and sports, and offers advice for living well with POTS. The conversation highlights how Kelsey's treatment has improved her ability to engage in everyday activities and support her family, with Carson providing charming and insightful commentary throughout.
In this episode of 'Let's Talk About the POTS Life', the hosts welcome special guest Allianna Moximchalk, Allianna’s Kitchen, a meal prep company in Pittsburgh. Allianna shares her journey of starting the business, rooted in her struggle with chronic health issues and learning about nutrition. She discusses her path to becoming a holistic health coach and her gradual transformation to creating nutritious meal options for herself, which eventually catered to her community. Ali details how her personal health issues motivated her to advocate for clean, whole-food diets as a cornerstone of well-being. She also highlights the importance of self-awareness and documenting dietary and lifestyle changes. The conversation touches on the challenges of sustaining healthy eating habits, the misconceptions about gluten-free diets, and the significance of avoiding processed foods. Allianna also mentions her offerings, including hundreds of free recipes on her blog, a membership providing meal plans and grocery lists, and meal delivery services. This insightful discussion underscores the importance of nutrition in managing health and provides practical advice for those managing autoimmune conditions like POTS.
Connect with Allianna:
Website: https://www.alliannaskitchen.com
Instagram: @alliannaskitchen
Podcast: The Allianna Moximchalk Podcast