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Remember Me
Remember Me Podcast
162 episodes
1 week ago
The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.
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Personal Journals
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All content for Remember Me is the property of Remember Me Podcast and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.
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Personal Journals
Society & Culture
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Should I get genetic testing?
Remember Me
57 minutes 20 seconds
2 weeks ago
Should I get genetic testing?

We’re tackling the question - Should I get genetic testing?

We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing.

Let us know what you think when you listen. - R+M

A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera. 

FTD Genetic Resources:

Progranulin Information Navigator

Cure MAPT FTD

CureGRN

End The Legacy - ALS & FTD

FTD Disorders Registry

The Penn FTD Center Genetics Resources

The AFTD Genetics Overview

The National Society of Genetic Counselors

UCSF Memory Familial FTD Page


Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠


If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates!

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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).

Always, always accept the good.

Remember Me
The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.