Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We talk about the nitty gritty of building Remember Me - while grieving, and healing, and mothering.. and our realization that "this is what it's all about."
Thank you to our incredible guests this season - our SPONSORS (!) Psilera, Progranulin Information Navigator & AviadoBio. Our amazing Patreon members that give us so much love + support + JOY. We love you all. Thank you for sticking with us - 2026 is going to great, we promise. And if the holiday season feels heavy - just know you are not alone. You are a part of a community who gets it. And we hope you find ways to let some light in + accept the good. xx-R+M
A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates! Also checkout our new charity foundation for the FTD Community www.remembermefoundation.org
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Get ready—comedian Kelsey Cook joins us for a powerful Real Talk episode all about Frontotemporal Dementia (FTD), caregiving, grief, and finding a way forward when life feels impossibly heavy. Kelsey opens up about her mom’s FTD journey and shares honest, heartfelt insights on love, loss, resilience, and why humor matters even in the hardest moments.
We adored connecting with Kelsey and hearing more about her incredible mom. Learn more about Kelsey at www.kelseycook.com or on Instagram @kelseycookcomedy.
Let us know your thoughts after listening! xx R+M
PS: Our Season 11 finale drops next week!
Thank you to our Season 11 Sponsors:
Progranulin Information Navigator
Psilera
Join our community on Patreon for exclusive episodes, behind-the-scenes content, and a supportive space for anyone touched by FTD: www.patreon.com/remembermecommunity
Stay connected with us on Instagram and catch updates, resources, and stories at
remembermeftd.com
Learn more about our nonprofit supporting families facing FTD at remembermefoundation.org
The Remember Me Podcast + Community offers hope, resources, and human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Allison Lindauer, PhD, APRN joins us to tackle the challenges of navigating behavioral changes caused by Frontotemporal Degeneration (FTD). We talk about some behavior management strategies and the importance of seeking support early and prioritizing your own well-being as a caregiver. Let us know what you think when you listen. - R+M
Allison Lindauer is a nationally certified nurse practitioner, researcher, and Associate Director at Oregon Health & Science University’s Aging and Alzheimer’s Disease Research Center, where she leads outreach and clinical care for families affected by dementia and FTD through her National Institute on Aging–funded STELLA-FTD study.
Learn more about the STELLA FTD Study here.
A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates! Also checkout our new charity foundation for the FTD Community www.remembermefoundation.org
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Emma Heming Willis is here! Powerhouse FTD advocate, loving wife and care partner to her husband Bruce, devoted mama to her two young daughters - entrepreneur and co-founder of Make Time Wellness and now a NYT bestselling author of the perfectly titled book The Unexpected Journey.
Emma's here to real talk with us about this journey. Let us know what you think when you listen and a big thank you to Emma for the light she is shining on FTD. Check out all the amazing work she is doing here. xx
A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
We’re tackling the question - Should I get genetic testing?
We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing.
Let us know what you think when you listen. - R+M
A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera.
FTD Genetic Resources:
Progranulin Information Navigator
The Penn FTD Center Genetics Resources
The National Society of Genetic Counselors
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach. and she so gently explains what happens to the body in the final days, hours + minutes. And above all letting us know that the body knows exactly what to do.
Help us de-stigmatize the conversation around death and dying by sharing this episode.
Let us know what you think when you listen. xx-r+m
You can now watch us on YOUTUBE!
Special thanks to our sponsors:
Psilera + Progranulin Information Navigator
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+m
You can now watch us on YOUTUBE!
Special thanks to Psilera for supporting our work at RM!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in.
Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives us the perfect Rachaelism related to sandwich caregiving. Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from amazing people in our community, experts + more.
We'll share some of the key themes of the last 5 years, but in a deeper way...and with our own personal stories. We're calling it "Real talk"... Here we go!
You can now watch us on YOUTUBE!
Want to support the podcast + get more content? Join us on Patreon! You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
....a quick look into our 11th Season of Remember Me.
This season is all about our reflections on our personal journeys and how we've learned and (hopefully) grown over 5 years of producing Remember Me.
It's called REAL TALK. It's different + a little risky... but here goes nothing. Clear eyes, full hearts, can't lose!
See you on Oct 1! xx - R+M
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For all things remember me visit remembermeftd.com, follow us on insta @remembermepodcast + join us on Patreon!
Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clinic in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward.
A VERY special thank you to today's sponsor AVIADOBIO for making this episode possible!
Want more Remember Me? Join us on Patreon
You get exclusive content and it's a great way to support the show! www.patreon.com/remembermecommunity
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If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just can't explain. Thank you, Alyssa for sharing your story with us. You are an incredible woman. Keep fighting.
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Gonna miss us on the break? Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here for what may be our favorite expert chat of all time.
An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you, Thank you, Thank you to Adam for all of his love and attention to our community + thank you for coming on to share your insight with us. You can learn more about Dr. Adam's Patreon he mentioned in today's episode here: https://www.patreon.com/thesisterwivesprofessor
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).
Always, always accept the good.
Today's episode features Lauren - who tells the story of her mother Pat's journey with Alzheimer's - PPA and lung cancer.
Lauren describes noticing her mother's speech becoming jumbled in August 2022, which led to a challenging path to diagnosis involving family dynamics between her, her two sisters, and their father. Lauren so astutely recounts how navigating the family dynamics helped her recognize their family patterns - and ultimately helped her realize her own strength in showing up for difficult situations.
This is such an incredibly raw, deep and meaningful conversation and we are so thankful to Lauren for opening up to us. We just know this conversation will help so many. Share it with someone you think needs to hear it.
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A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:
PROGRANULIN INFORMATION NAVIGATOR &
Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.
Support our podcast and join us on Patreon - You get exclusive content + a space to share and connect with others. www.patreon.com/remembermecommunity
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Jackie von Salm, a chemist and Chief Scientific Officer at Psilera, shares her father Terry's journey with FTD.
We loved how Jackie was so raw + honest about family dynamics, becoming Terry's POA in her 20s, and how she learned how to be direct + honest in how she felt and what she needed while caregiving.
You can learn more about what she's up to at Psilera here. You can also hear us chat all about their Research Summit this year on Patreon - along with an extended version of this episode.
Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
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Special thank you to today's sponsor AVIADOBIO.
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
This week's episode dives into the legal side of family dynamics with Elder Law Attorney Jerry Rothkoff. We cover all of our burning legal questions - from POA to Guardianship to Medicaid and Medicare. Jerry gives lots of wisdom on how family dynamics play a role in his job and how he navigates it all.
We want to thank Jerry for coming on the podcast but also for supporting our community with so much care and compassion. You can learn more about Rothkoff Law Group here.
The association Jerry mentions in today's episode is the Life Care Planning Law Firms Association, https://www.lcplfa.org/
Special thank you to today's sponsor AVIADOBIO.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. She covers a range of topics, from navigating Medicaid to ensuring Robert's safety—not only in a physical sense but also on social media. It's clear that she has truly gone above and beyond in her role. We thoroughly enjoyed our conversation with Amber and can't wait to hear your thoughts!
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Special thank you to today's sponsor AVIADOBIO.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilities... Christy seemed to go above and beyond to provide the best loving care for her dad. What was so apparent to us - was how naturally she adapted to his reality - always keeping his personhood at the forefront of her mind. But it was not without so much sacrifice and grief - sharing how deeply the disease impacted her family. But ultimately we saw Christy's story as the most amazing example for her children of devotion and service - and what we do for the people we love.
Thank you for sharing your story with us, Christy. You are an amazing daughter + advocate.
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Today's episode feels like a conversation between 3 old friends.
Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD).
For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the grief and challenges having a loved one with FTD. We loved this conversation - and the special peice of Holly at the end. Thank you, Genessee for sharing your story with us!
An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!
If you're curious about anything RM, we'd love to connect with you on Instagram, and visit our website at www.remembermeftd.com, all the latest updates!
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Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.