In this Retina UK podcast, Research Development Manager Kate Arkell is joined by Laura Taylor, Research Optometrist with the Oxford Eye Research Group, and Randa Li, Ophthalmologist at Moorfields Eye Hospital, to explain the wide range of tests used in the diagnosis and monitoring of inherited retinal diseases (IRDs).
Across the discussion, Laura and Randa address common misconceptions, practical tips for preparing for appointments, and the importance of regular monitoring. The episode aims to give listeners the knowledge and confidence to understand their test results and engage actively in their care.
Joining us for an "Ask the Expert" session is Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and consultant at University Hospital Wales where she runs a genetic eye clinic.
During the session, participants had the opportunity to ask questions submitted in advance as well as engage in a live Q&A. The discussion covered a wide range of topics, from personal concerns to the latest developments in ophthalmology research.
Thank you to everyone who joined us and contributed to such an insightful and engaging conversation.
The latest e-Newsletter from Retina UK.
Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442
In this special episode of the Retina UK Podcast, Lauren is joined by actress and BBC Lifeline spokesperson Louisa Lytton to talk about the recent BBC Lifeline Appeal in support of Retina UK.
Louisa opens up about her personal connection to inherited sight loss, what inspired her to champion the appeal, and the moments during filming that stayed with her. Together, Lauren and Louisa explore why raising awareness matters, how Retina UK supports individuals and families across the country, and the life-changing impact your support can have.
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2025 (Issue 188). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources.
Contents in this edition are as follows:
Findings from our survey of over 600 people living with inherited sight loss.
June 2025
Copies of this report in plain text and PDF formats can be found on the Retina UK website: RetinaUK.org.uk/resource/retina-uk-sight-loss-survey/
In this episode we are joined by two of our fantastic fundraising team members; Joe, our Community and Events Coordinator and James, our Head of Income Generation - to give us a sneak peek at some of the exciting events and appeals we have coming up over the next year. We have lots going on as we continue to celebrate our 50th year at Retina UK, and there is something for everyone!
The latest e-Newsletter from Retina UK.
Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442
Retina UK is delighted to be hosting a webinar with British Blind Sport.
This session will highlight how sport and physical activity can play a powerful role in boosting health, confidence and wellbeing for people living with sight loss. You’ll also hear from British Blind Sport about who they are, the support they offer, and the wide range of opportunities available through their membership, events and activities.
Whether you’re already active or just looking to get started, this webinar will provide inspiration and practical advice on how to get involved.
Professor Julie Silvestri
Community members share their experiences:
James Clarke, Head of Income Generation, Retina UK
Christopher Patnoe, Head of EMEA Accessibility and Disability Innovation at Google
Speakers from AAVantgarde, Octant, Alkeus Pharmaceuticals, Sepul Bio and Beacon Therapeutics
Professor Jane Sowden, Professor of Developmental Biology and Genetics at University College London (UCL) Great Ormond Street Institute of Child Health
Professor Michel Michaelides, Professor of Ophthalmology, University College London and Consultant Ophthalmic Surgeon, Moorfields Eye Hospital
Kathy Evans, Chair of Trustees and Professor JohnMarshall MBE, Trustee, Retina UK
Michael Crossland, Senior Research Fellow, University College London (UCL) Institute of Ophthalmology and Rachel Canavan, PhD student in Psychology, UCL
Robert Henderson, Consultant Ophthalmic Surgeon, Great Ormond Street Hospital and Moorfields Eye Hospital
Paula McGrath, Deputy Chief Executive, Retina UK, leads a panel session