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The MS Trust podcast

MS Trust

99 episodes

2 weeks ago

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Living with persistent MS-related pain isn’t just a physical challenge it can take a big toll on your emotional wellbeing and mental health too. In this episode, we explore the psychological impact of chronic pain. We are joined by Dr Phillip Simpson, Consultant Clinical Psychologist with over 20 years of NHS experience, and Heather Daly, who shares her personal journey of living with MS and...

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Health & Fitness

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Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Living with persistent MS-related pain isn’t just a physical challenge it can take a big toll on your emotional wellbeing and mental health too. In this episode, we explore the psychological impact of chronic pain. We are joined by Dr Phillip Simpson, Consultant Clinical Psychologist with over 20 years of NHS experience, and Heather Daly, who shares her personal journey of living with MS and...

Show more...

Health & Fitness

Episodes (20/99)

The MS Trust podcast

Coping with MS pain in the long term: how to look after your mental health

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Living with persistent MS-related pain isn’t just a physical challenge it can take a big toll on your emotional wellbeing and mental health too. In this episode, we explore the psychological impact of chronic pain. We are joined by Dr Phillip Simpson, Consultant Clinical Psychologist with over 20 years of NHS experience, and Heather Daly, who shares her personal journey of living with MS and...

1 week ago

1 hour 24 minutes

The MS Trust podcast

Bonus episode: guided mindfulness for MS pain

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this special bonus episode of the MS Trust Podcast, mindfulness teacher Justin Standfield shares two guided meditations designed to help ease the challenges of living with MS pain. You’ll hear a shorter practice for pain awareness and relief, plus a longer meditation created especially for chronic pain. These two meditations can offer practical tools to bring comfort and calm whenever pai...

3 weeks ago

17 minutes

The MS Trust podcast

Managing MS nerve pain: what you can do yourself

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Neuropathic pain or nerve pain is one of the most challenging symptoms of MS, unpredictable, intrusive, and often invisible. In this episode, we focus on what people can do themselves, at home, to ease that pain and take back some control. We talk to lead pain specialist nurse Katrine Dyer and mindfulness teacher Justin Standfield who share practical strategies and calming techniques that ca...

1 month ago

1 hour 19 minutes

The MS Trust podcast

ECTRIMS Patient Community Day: why researchers need people with MS to get involved

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode we explore the biggest breakthroughs from ECTRIMS 2025, the world’s largest MS research conference. We look into new treatment insights, the push for inclusive research, and how people with MS can shape the future of care. Featuring Brett Drummond from MS translate, Natalie Busari from The Nerve of My MS, Dr. Claire Winchester research and engagement, at MS Trust , and Lucy ...

2 months ago

1 hour 9 minutes

The MS Trust podcast

What does the MS hug feel like? Banding tightness, rib cramps, stitch sensations, girdling pains, and how to deal with it

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode of the MS Trust Podcast, we explore the MS Hug—one of the most confusing and uncomfortable symptoms of multiple sclerosis. From tight banding and rib cramps to stitch-like pain and breathlessness, we unpack what it feels like, why it happens, and how to manage it. Neurologist Kate Petheram joins us to explain the science behind the symptom, and we hear from people living with...

3 months ago

40 minutes

The MS Trust podcast

Why can’t I sleep? Night-time MS symptoms uncovered

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms—from nerve pain, spasms, and restless legs to bladder urgency, burning sensations, and cold feet—and explore why these issues often seem to worsen after dark. Featuring insights from Associate Professor Rod Middleton from the UK MS Regist...

4 months ago

1 hour 5 minutes

The MS Trust podcast

Fear of falling with MS - and what to do if you do have a fall

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Worried about falling or unsure what to do if you do fall? You're not alone. Falls are a common concern for people living with multiple sclerosis. In this episode, expert physio Hilary Gunn breaks down why people with MS are more prone to falling. Discover how to spot the early warning signs and learn what steps to take if a fall occurs. We also delve into simple, effective strategies to bu...

5 months ago

1 hour 14 minutes

The MS Trust podcast

MS and relationships: balancing love and care

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Relationships can be complicated, even at the best of times. When one partner is living with MS, it can bring a whole host of new challenges as well as opportunities for deeper connection. In this podcast, we explore the emotional and practical realities of supporting a partner with MS, and how couples can support each other through changing dynamics. Psychologist Dr Ashley Brown joins...

6 months ago

1 hour 32 minutes

The MS Trust podcast

Understanding and managing spasticity and spasms in MS

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Spasticity and spasms are common MS symptoms that vary from person to person and can be challenging to understand and manage. In this episode, we explore how these symptoms can feel with the help of our MS community and what you can do about them. We asked MS specialist physiotherapist Wendy Hendrie to share her near 40 years of experience with us. We are very glad we di...

7 months ago

1 hour 15 minutes

The MS Trust podcast

MS awareness week 2025 - MS Conversations

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Talking about living with MS can be a tough thing to do, but open and honest conversations are vital in building understanding for the condition. In this special episode for MS Awareness Week 2025, we explore the power of MS conversations—why they matter and how they can make a difference. This MS Awareness Week, we're working with the MS Society, MS Together, MS-UK, Neuro Therapy Netw...

8 months ago

44 minutes

The MS Trust podcast

Living with progressive MS: therapies, treatments & daily strategies

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you been told "nothing can be done" to treat progressive MS? Then this is the episode for you. Join Nick and Helena as they debunk this myth with the expertise of neurologist Dr. Emma Tallantyre, exploring current medical and non-medical treatments, effective symptom management, and rehabilitation therapies. Plus, get the inside scoop on the MS Trust's new book, "Progression in MS...

8 months ago

1 hour 2 minutes

The MS Trust podcast

Bonus Episode: Real stories on how to come to terms with a Progressive MS Diagnosis

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate the complexities of their shared experience, from the emotional challenges to the practical ways they've found balance and connection. Yv...

9 months ago

1 hour 4 minutes

The MS Trust podcast

How do you come to terms with a progressive MS diagnosis?

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment. Helena and Nick are joined by Dr Angeliki Bogosian, a health psychologist specialising in MS, who shares insights on coping strategies, the importance of psychological support, and how mindfuln...

9 months ago

1 hour 23 minutes

The MS Trust podcast

What is advanced MS?

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 From challenges to special moments: advanced MS comes with a whole heap of them both. Listen now to hear three different perspectives: a person living with advanced MS, a carer and a health professional. We’re tackling advanced MS in this podcast episode of ‘Breaking it down’. Disclaimer: we discuss some sensitive topics in our interviews, including difficult MS symptoms and death. We hear f...

10 months ago

1 hour 9 minutes

The MS Trust podcast

MS myths and jargon explained

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Join us for a jargon busting, myth smashing podcast where we explore baffling multiple sclerosis terms and common misconceptions. Ever heard terms like PIRA, RAW, or smouldering MS that’ve left you scratching your head and asking for a translation to plain English? Better yet, have you been on the receiving end of a baffling tale involving one of the many MS myths out there? “My friend...

11 months ago

1 hour 19 minutes

The MS Trust podcast

Your most asked MS questions in 2024

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out. Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the available information, support and self-management strategies. Plus, we cover some of the more unusual things that you’ve been asking about, like tattoos, Botox and...

1 year ago

48 minutes

The MS Trust podcast

Travelling with MS: we talk public transport challenges and solutions

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources. “It’s just really complicated. I hate having medical appointments because it’s so difficult to get to them.” - Antoinette Does this sound familiar?...

1 year ago

1 hour 10 minutes

The MS Trust podcast

Bringing MS to work: conversations, challenges, and vocational rehab

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career? Then join us as we delve into the topic of MS at work. Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work. We have a jam-packed show with four fantastic guest...

1 year ago

1 hour 15 minutes

The MS Trust podcast

Behind the wheel part 2: the MS driver's guide to driving assessments

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What is a driving assessment? Does your mind conjure up memories of your driving test? Do you see a 17-year-old version of yourself panicking and sweating? Well, the second part of our podcast series on driving and multiple sclerosis covers everything that you need to know. Occupational therapist, Wendy Valentine and driving assessor, James Hinkins take us through the roadmap on driving asse...

1 year ago

48 minutes

The MS Trust podcast

Behind the wheel part 1: the MS driver's guide to the Motability Scheme

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Driving when you live with MS might make you feel like you’re stuck at a red light. You might start to ask questions. Who do I need to tell about my diagnosis? Can I still drive to see my family and friends? What adaptions do I need? Well, our two-part podcast special should give you some answers and dispel a few myths. In part one, we’re joined by Claire Winchester, MS Trust Head of Info an...

1 year ago

46 minutes