💚 Welcome to The Lifestyle Prescription by Pharmacy Planet with Rena Annobil 💚In this heartfelt episode, Rena speaks with Paven Kaur, a devoted mother navigating life with her child who has Prune 1 Syndrome — a rare genetic disorder that affects muscle tone, mobility, and communication. Through honesty and vulnerability, Paven shares her powerful story of resilience, love, and hope in the face of extraordinary challenges.From the moment of diagnosis to everyday realities, this conversation shines a light on what it means to raise a child with complex additional needs, and how families can find strength, joy, and community even in the hardest moments.💬 We explore:• What Prune 1 Syndrome is — and why awareness matters• Early signs during pregnancy and challenges with diagnosis• The emotional and cultural impact of raising a child with disabilities• Communication with non-verbal children and the power of connection• Navigating family life, marriage, and support systems• Coping with stigma in South Asian communities• PEG feeding and caring for complex medical needs• Finding light in the dark — staying positive and celebrating small wins• Writing, community, and faith as tools for healing and hope• Advice for single mothers and families seeking disability supportThis episode is a moving reminder that disability does not define a child — love does. If you’re a parent, carer, educator, or advocate for inclusion, this conversation offers inspiration, understanding, and practical advice from the heart. 💚🔗 Follow Paven Kaur:www.paven.co.ukInstagram: https://www.instagram.com/_iampaven_Instagram: https://www.instagram.com/paven.hairandmakeup Tiktok: https://www.tiktok.com/@_iampaven_ 🔗 Follow Rena Dipti Annobil:Instagram: https://www.instagram.com/renadannobil/ https://www.instagram.com/sisterhoodofmummyimperfect/ 🔗 Follow Pharmacy Planet:Website: https://www.pharmacyplanet.com/ CHAPTERS:Intro: 00:00 – 01:21What is Prune 1 Syndrome? Rare Genetic Disorder Explained: 01:22 – 02:32Early Pregnancy Signs of Prune 1 Syndrome: 02:33 – 06:04Why There’s So Little Research on Prune 1 Syndrome: 06:05 – 07:25How Rare Is Prune 1 Syndrome?: 07:26 – 07:44Prune 1 Syndrome and Cerebral Palsy Connection: 07:45 – 08:31How to Communicate with a Non-Verbal Child: 08:32 – 10:37Coping as a Family with Prune 1 Syndrome: 10:38 – 12:47South Asian Cultural Views on Disability and Inclusion: 12:48 – 15:25Marriage Challenges When Raising a Child with Additional Needs: 15:26 – 19:09Support for Parents of Children with Prune 1 Syndrome: 19:10 – 21:07A Day in the Life of a Child with Prune 1 Syndrome: 21:08 – 21:50What Is PEG Feeding and Why It’s Needed: 21:51 – 23:54Are Schools Equipped for Prune 1 Syndrome and Complex Needs?: 23:55 – 25:26A Day in the Life of a Child with Complex Additional Needs: 25:27 – 27:39Getting Help for Children Diagnosed with Prune 1 Syndrome: 27:40 – 33:22Staying Positive While Raising a Child with Additional Needs: 33:23 – 35:29How Motherhood Changes You When Raising a Child with Special Needs: 35:30 – 36:52Creating Joyful Moments with a Child with Prune 1 Syndrome: 36:53 – 40:47The Reality of Living with Prune 1 Syndrome: 40:48 – 41:43Does Society Understand Families with Additional Needs?: 41:44 – 44:48How Blog Writing Helps Overcome Isolation as a Special Needs Parent: 44:49 – 45:28Advice for Single Mothers Raising Children with Special Needs: 45:29 – 46:52Where to Find Support and Advice for Children with Special Needs: 46:53 – 48:00Outro: 48:01 – 48:24

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