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My Journey with a Rare Ear Disorder No One Could Explain | Episode 1
The Sound of Silence: Living with Special Ears
22 minutes
1 week ago
My Journey with a Rare Ear Disorder No One Could Explain | Episode 1
My Journey with a Rare Ear Disorder No One Could Explain | Episode 1
Show Notes:
Hi, I’m Simone Kriener and welcome to my very first episode of The Sound of Silence: Living with Special Ears. My life changed the day terrifying symptoms of Patulous Eustachian Tube (a rare ear disorder) began and doctors insisted nothing was wrong. As my condition worsened, I felt panic, confusion, and deep loneliness while moving through misdiagnosis and long stays in psychological and psychiatric hospitals. Everything shifted when one doctor finally believed me. With a real diagnosis, I began managing my condition holistically and created this space to support and empower others with rare ear disorders. In this episode, I share my journey and offer awareness, validation, and gentle tools for anyone seeking hope and healing.
In this episode, I will discuss:
(00:00) Introduction to the Sound of Silence
(02:11) My Journey With Rare Ear Disorder Begins
(02:38) The Onset of Symptoms
(04:52) Medical Insights and Struggles
(09:58) The Psychological Impact
(12:15) Finding Validation and Relief
(14:32) Living With Patulous Eustachian Tube
(18:59) Building a Supportive Community
Bio
I am a yoga teacher, spiritual guide, and wellness entrepreneur dedicated to supporting individuals living with rare ear disorders. As the creator and host of The Sound of Silence: Living with Special Ears, I use my experience with mindfulness and holistic healing to educate and empower listeners. I also own a vegan organic superfood store and weave wellness into everything I do. My mission is to create a supportive, heart-centered community for anyone seeking understanding, hope, and guidance on their ear health journey.
Resources:
My WhatsApp: +49 170 703 49 84
My Instagram: @simone.kriener and @earpodcast
My LinkedIn: linkedin.com/in/simone-kriener-0622b8281/
My Facebook: Simone Kriener
My Website: www.starseed-transformation.com and www.tomatis-bergischesland.com