Emily is the very first guest on this podcast, and her story brings a powerful voice to the realities of living with Patulous Eustachian Tube (PET). She faced debilitating symptoms beginning in 2016, enduring constant autophony that turned every word into a megaphone and every heartbeat into overwhelming noise. After losing 85 pounds, her condition intensified and led her through years of failed procedures, traumatic surgeries, hearing loss, and a mental health crisis that forced her to leave her career. In this episode, Emily shares her experience navigating multiple PET treatments, the creation of the Collinson Foundation, and the profound relief she finally found after years of searching for answers.   In this episode, Simone and Emily will discuss: (00:00) Introduction (02:19) Meet Emily: A Fellow Sufferer (02:54) Emily's Journey with Patulous Eustachian Tube (05:13) Medical Procedures and Challenges (06:07) The Impact of Weight Loss on Symptoms (07:39) Exploring Treatment Options (09:15) The Emotional and Mental Toll (21:46) Creating Awareness and Support (34:12) Closing Thoughts and Hope   Guest Bio: Emily is a Patulous Eustachian Tube advocate, author, and founding board member of the Collinson Foundation for Patulous Eustachian Tube (PET). After an eight-year journey through multiple procedures and surgeries to treat her debilitating rare ear disorder, she has dedicated herself to raising awareness and providing resources for PET patients worldwide.    Emily’s Resources: Emily’s Books on Amazon: https://a.co/d/f8KI8yz   The Link for my book on Facebook Marketplace: facebook.com/marketplace/item/2002972693873762/   LinkedIn Page for the Foundation (Under Construction): www.linkedin.com/in/collinson-foundation-for-patulous-eustachian-tube-429b9a367     My Resources: My WhatsApp: +49 170 703 49 84  My Instagram: @simone.kriener and @earpodcast My LinkedIn: linkedin.com/in/simone-kriener-0622b8281/  My Facebook: Simone Kriener  My Website: www.starseed-transformation.com and www.tomatis-bergischesland.com  

Show Notes: Hi, I’m Simone Kriener and welcome to my second episode of The Sound of Silence: Living with Special Ears. Living with rare ear disorders pushed me into a cycle of stress, fatigue, and worsening symptoms, until I rebuilt my life through mindful routines, holistic healing, and nourishing nutritional practices. After facing the emotional and physical stakes of Patulous Eustachian Tube, I have transformed my struggle into a journey of wellness, purpose, and teaching. In this episode, I share practical tools to manage ear-related conditions, regulate the nervous system, and create healing through daily habits.   In this episode, I will discuss: (00:00) Introduction (02:35) Daily Routine and Morning Rituals (04:18) Managing Stress and Nervous System Health (08:46) The Importance of Nutrition (12:22) Superfood Shakes and Their Benefits (16:49) Homemade Remedies for Eustachian Tubes (20:36) The Role of Yoga and Mental Health (23:09) Finding Your Path and Making Changes (26:38) Conclusion and Upcoming Episode   Bio I am a yoga teacher, spiritual guide, and wellness entrepreneur dedicated to supporting individuals living with rare ear disorders. As the creator and host of The Sound of Silence: Living with Special Ears, I use my experience with mindfulness and holistic healing to educate and empower listeners. I also own a vegan organic superfood store and weave wellness into everything I do. My mission is to create a supportive, heart-centered community for anyone seeking understanding, hope, and guidance on their ear health journey.   Resources: My WhatsApp: +49 170 703 49 84  My Instagram: @simone.kriener and @earpodcast My LinkedIn: linkedin.com/in/simone-kriener-0622b8281/  My Facebook: Simone Kriener  My Website: www.starseed-transformation.com and www.tomatis-bergischesland.com

  My Journey with a Rare Ear Disorder No One Could Explain | Episode 1   Show Notes: Hi, I’m Simone Kriener and welcome to my very first episode of The Sound of Silence: Living with Special Ears. My life changed the day terrifying symptoms of Patulous Eustachian Tube (a rare ear disorder) began and doctors insisted nothing was wrong. As my condition worsened, I felt panic, confusion, and deep loneliness while moving through misdiagnosis and long stays in psychological and psychiatric hospitals. Everything shifted when one doctor finally believed me. With a real diagnosis, I began managing my condition holistically and created this space to support and empower others with rare ear disorders. In this episode, I share my journey and offer awareness, validation, and gentle tools for anyone seeking hope and healing.   In this episode, I will discuss: (00:00) Introduction to the Sound of Silence (02:11) My Journey With Rare Ear Disorder Begins (02:38) The Onset of Symptoms (04:52) Medical Insights and Struggles (09:58) The Psychological Impact (12:15) Finding Validation and Relief (14:32) Living With Patulous Eustachian Tube (18:59) Building a Supportive Community   Bio I am a yoga teacher, spiritual guide, and wellness entrepreneur dedicated to supporting individuals living with rare ear disorders. As the creator and host of The Sound of Silence: Living with Special Ears, I use my experience with mindfulness and holistic healing to educate and empower listeners. I also own a vegan organic superfood store and weave wellness into everything I do. My mission is to create a supportive, heart-centered community for anyone seeking understanding, hope, and guidance on their ear health journey.   Resources: My WhatsApp: +49 170 703 49 84  My Instagram: @simone.kriener and @earpodcast My LinkedIn: linkedin.com/in/simone-kriener-0622b8281/  My Facebook: Simone Kriener  My Website: www.starseed-transformation.com and www.tomatis-bergischesland.com  

Welcome to The Sound of Silence, a podcast for anyone living with rare ear disorders or “special ears.” In this short trailer, I’ll share what this podcast is about, the kinds of stories and expert insights you can expect, and how it’s designed to bring community, support, and hope to anyone who feels misunderstood. Subscribe and join our journey together!