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Emily is the very first guest on this podcast, and her story brings a powerful voice to the realities of living with Patulous Eustachian Tube (PET). She faced debilitating symptoms beginning in 2016, enduring constant autophony that turned every word into a megaphone and every heartbeat into overwhelming noise. After losing 85 pounds, her condition intensified and led her through years of failed procedures, traumatic surgeries, hearing loss, and a mental health crisis that forced her to leave her career. In this episode, Emily shares her experience navigating multiple PET treatments, the creation of the Collinson Foundation, and the profound relief she finally found after years of searching for answers.
In this episode, Simone and Emily will discuss:
(00:00) Introduction
(02:19) Meet Emily: A Fellow Sufferer
(02:54) Emily's Journey with Patulous Eustachian Tube
(05:13) Medical Procedures and Challenges
(06:07) The Impact of Weight Loss on Symptoms
(07:39) Exploring Treatment Options
(09:15) The Emotional and Mental Toll
(21:46) Creating Awareness and Support
(34:12) Closing Thoughts and Hope
Guest Bio:
Emily is a Patulous Eustachian Tube advocate, author, and founding board member of the Collinson Foundation for Patulous Eustachian Tube (PET). After an eight-year journey through multiple procedures and surgeries to treat her debilitating rare ear disorder, she has dedicated herself to raising awareness and providing resources for PET patients worldwide.
Emily’s Resources:
Emily’s Books on Amazon: https://a.co/d/f8KI8yz
The Link for my book on Facebook Marketplace: facebook.com/marketplace/item/2002972693873762/
LinkedIn Page for the Foundation (Under Construction): www.linkedin.com/in/collinson-foundation-for-patulous-eustachian-tube-429b9a367
My Resources:
My WhatsApp: +49 170 703 49 84
My Instagram: @simone.kriener and @earpodcast
My LinkedIn: linkedin.com/in/simone-kriener-0622b8281/
My Facebook: Simone Kriener
My Website: www.starseed-transformation.com and www.tomatis-bergischesland.com