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The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Rachel
80 episodes
5 days ago
The SpoonFull Show (formerly SpoonFull of Strength) is hosted by Rachel, who has lived with Multiple Sclerosis for 10 years and Type 1 Diabetes for more than 25. Each episode blends heartfelt Spoonie conversations with insightful expert interviews, exploring what it really means to live with chronic illness. From the struggles of diagnosis and the mental load of daily symptoms, to the victories of advocacy, resilience, and finding joy, this podcast offers community, encouragement, and the reminder that even a spoonful of strength can carry you through.
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All content for The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength is the property of Rachel and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The SpoonFull Show (formerly SpoonFull of Strength) is hosted by Rachel, who has lived with Multiple Sclerosis for 10 years and Type 1 Diabetes for more than 25. Each episode blends heartfelt Spoonie conversations with insightful expert interviews, exploring what it really means to live with chronic illness. From the struggles of diagnosis and the mental load of daily symptoms, to the victories of advocacy, resilience, and finding joy, this podcast offers community, encouragement, and the reminder that even a spoonful of strength can carry you through.
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Health & Fitness
Episodes (20/80)
The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Healing Together: Navigating Illness as a Family

Living with chronic or mental illness can feel incredibly isolating — but the truth is, illness doesn’t just affect the person diagnosed. It impacts families, relationships, and the people who love us, often in ways no one is prepared for.
In this episode, Rachel is joined by Michelle Sherman, licensed clinical psychologist and expert in family systems and mental illness, for an honest and compassionate conversation about the shared experience of illness. Together, they explore what it’s like to live with mental illness while also navigating the emotional responses, misunderstandings, and challenges that arise within families.
This conversation bridges both perspectives — the person living with illness and the loved ones trying to support them — offering insight, validation, and practical tools for better communication, healthier boundaries, and deeper empathy on all sides.
Whether you’re managing illness yourself or struggling to feel understood by the people closest to you, this episode is a reminder that healing doesn’t have to happen alone.
In this episode, we discuss:
Why illness creates emotional ripple effects within families
What to do when loved ones don’t understand or believe your illness
How guilt, frustration, and grief show up on both sides
Setting boundaries while maintaining connection
Finding compassion — for others and for yourself
This episode is for anyone navigating the complicated space between loving someone and being the one who needs love.
Follow Michelle at https://www.instagram.com/michelle_sherm/
Her website: https://www.seedsofhopebooks.com/
You can find her books and great resources for families.


Follow SpoonFull of Strength at:

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠⁠

Use code PODCAST for 25% off your entire order

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1 week ago
40 minutes 16 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
The Body Remembers: Chronic Illness, Disordered Eating, Medical PTSD, and Healing

In this episode, Rachel sits down with therapist, educator, and author Tammy Gangloff, whose work bridges chronic illness, trauma, eating disorders, and lived experience. Tammy shares her personal story of growing up with scoliosis, undergoing multiple spine surgeries, and navigating years of recovery from an eating disorder, alcoholism, and PTSD.

What began as a simple survey on social media became meaningful research, professional training presentations, and ultimately her new book—highlighting the mental and emotional layers of chronic illness that are so often overlooked.

Their conversation explores the turning points in Tammy’s mental health journey, including her decision to seek inpatient treatment when PTSD became unmanageable. She opens up about the role of talk therapy, EMDR, safe relationships, and the rare but life-changing impact of seeing someone fully recovered.

Together, they unpack the struggle between independence and needing help, redefining interdependence as a healthy, human way of surviving the unpredictable reality of chronic illness.

Tammy also shares vital insight into medical PTSD—why it’s so common, why it’s so misunderstood, and what she wishes doctors and medical professionals knew about the patients who walk into their rooms already carrying fear, exhaustion, and past trauma.

A powerful, validating conversation for anyone living with chronic illness, supporting someone who is, or working in healthcare.


Follow Tamie on Instagram at: https://www.instagram.com/authortamiegangloff/


Find Tamie's book, Chronic Illness and Eating Disorders: Assessment, Clinical Skills, and Lived Experiences, here:

https://a.co/d/0wV7XCa

Follow SpoonFull of Strength at:

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠⁠

TikTok:⁠ ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠

Use code PODCAST for 25% off your entire order


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2 weeks ago
40 minutes 13 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Hormonal Health & Chronic Illness: What Women Need to Know

In this episode of The SpoonFull Show, Rachel is joined by Melissa, a registered nurse with over three decades of experience in women’s health and autoimmune conditions. Together, they dive into the often-overlooked relationship between hormones and chronic illness — how stress, cortisol, thyroid function, and even basic nutrient absorption can shift the way Spoonies feel day to day. 

Melissa breaks down why hormones are the body’s chemical messengers, why they matter long before menopause, and how issues like insulin resistance, thyroid dysfunction, and cortisol dysregulation can hide behind chronic symptoms. She also opens up about her own journey with Hashimoto’s, the importance of comprehensive testing, and why understanding your “baseline” numbers can be a game changer for long-term health. 

The conversation also touches on perimenopause in younger women, the role of nutrition, and the power of having a supportive community — including Melissa’s own Menopause Skool platform.  It’s a wonderful Facebook-like community for women to learn and support each other. All ages are welcome. 

It’s an empowering, eye-opening discussion designed to help Spoonies advocate for themselves and better understand what their bodies are trying to say.

Enroll in Melissa’s Skool here ( It’s a wonderful Facebook-like community for women to learn and support each other. All ages are welcome.)

https://www.skool.com/navigating-through-your-pause/about


Follow Melissa on Instagram at: https://www.instagram.com/melissa_thyroid_rn/


Follow SpoonFull of Strength at:

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠⁠

TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠⁠

Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠⁠

Use code PODCAST for 25% off your entire order


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3 weeks ago
48 minutes 56 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Fighting Fatigue: Uncovering the 5 Root Causes

In this powerful episode of SpoonFull of Strength, Rachel sits down with Dr. Jenny Tufenkian, a naturopathic physician with decades of experience treating complex chronic illness, and someone who has personally survived multiple severe crashes of ME/CFS, long COVID, and hormone-triggered fatigue.

Dr. Jenny opens up about her early health struggles, a devastating medical-school crash that left her bedridden for months, the emotional and spiritual breakdown that followed, and the remarkable healing that came from subconscious work, hypnotherapy, and rebuilding her body from the inside out. She also explains what happened when she relapsed years later during perimenopause, and again after COVID, and how those experiences shaped the work she does today.

Together, we explore:
• The 5 core energy drainers (root causes of chronic fatigue)
• How stress and the hormone triangle (adrenals, thyroid, ovaries/testes) create the “gateway” to chronic illness
• Why viral reactivation happens (EBV, parvovirus, and more) — especially after stress or infection
• The role of the gut, mitochondria, toxins, and immune dysregulation
• What long COVID teaches us about ME/CFS
• The unexpected power of subconscious healing, hypnotherapy, and emotional release
• How to honor your body when you’re in a crash — and why relapses don’t mean failure
• What true remission looks like, and how to protect it

If you’ve struggled with chronic fatigue, long COVID, ME/CFS, or unexplained exhaustion, this episode offers validation, clarity, and hope — plus practical places to start.


Learn more or apply to work with Dr. Jenny at drjennyteufenkian.com.

Follow Dr Jenny on Instagram at: https://www.instagram.com/dr.jennytufenkian/

Follow SpoonFull of Strength at:

Instagram:

⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠⁠

TikTok: ⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠⁠

Use code PODCAST for 20% off your entire order


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1 month ago
40 minutes 24 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Life Before and After Diagnosis: Rewriting Your Story with Chronic Illness

In this Spoonie Chats episode, Rachel is joined by Christina Lisk, one of the top-downloaded guests from episode 6 of the SpoonFull of Strength podcast.

Christina shares big updates since her first appearance: her ovarian vein transposition surgery has now been declared a success, and she’s received formal diagnoses of hypermobile Ehlers-Danlos Syndrome (hEDS) and POTS. What once felt like “bad luck” running through generations is now understood as genetics—and that shift changes everything about how she sees her past, her body, and her future.

Together, Rachel and Christina explore what it means to live a life that feels split into “before diagnosis” and “after diagnosis.” They talk about:

  • The shock of a diagnosis that shatters your story overnight

  • When your body slows down but your mind is still go-go-go

  • Redefining success after you can’t work the way you used to

  • Learning to ask for help and respect your limits (instead of self-abandoning for productivity)

  • Advocating with doctors, using research wisely, and getting clear on what you want from your care

  • Christina’s powerful concept of “catastrophic reconstruction”—rebuilding your identity after everything you believed about yourself breaks


If you’re still in the “before” phase—searching for answers, feeling gaslit, or terrified of what a diagnosis might mean—or if you’re trying to figure out who you are after everything changed, this conversation will make you feel seen.


What’s one way you’ve changed—for better or for harder—since your diagnosis?


Follow Christina on Instagram at https://www.instagram.com/therunciblespoonie/


Find her collaborative book here: https://www.walmart.com/ip/Seasons-of-Sisterhood-The-Magic-of-Our-Journey-to-Cameroon-Paperback-9781957296395/14151274823?wmlspartner=wlpa&selectedSellerId=0&adid=2222222229214151274823_0_0000000000_569516217&wmlspartner=wmtlabs&wl0=e&wl1=o&wl2=c&wl3=72843111714422&wl4=pla-2324642460507122%3Aaud-815770365&wl5=49079&wl6=&wl7=&wl10=Walmart&wl11=Online&wl12=14151274823_0&wl14=seasons+of+the+sisterhood+book&veh=sem&gclid=a35792ca181f1ca827dafbd6980e9b57&gclsrc=3p.ds&msclkid=a35792ca181f1ca827dafbd6980e9b57&sid=125a186c-449c-43ad-b2c5-7a7dcbab99c1

Follow SpoonFull of Strength at:

Instagram:

⁠⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠⁠

TikTok: ⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠⁠

Use code PODCAST for 20% off your entire order

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1 month ago
43 minutes 46 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
A SpoonFull of Connection: When Illness Tests Your Relationship

What happens to love when illness enters a relationship?

In this episode of The SpoonFull Show, Rachel sits down with Lisa Gray, LMFT, author of Thriving in a Relationship When You Have a Chronic Illness: An ACT-Based Guide for Protecting Your Bond at Each Stage of the Journey.

Lisa is a licensed marriage and family therapist who helps couples navigate the challenges that come with chronic illness, loss, and changing roles — using an Acceptance and Commitment Therapy (ACT) approach that focuses on connection, values, and emotional resilience.

Although Lisa’s book applies to any type of relationship, today’s conversation focuses on marriage — how illness can shift communication, identity, and expectations, and how couples can protect their bond through it all.

Whether you’re the partner living with illness or the one loving and supporting through it, this episode offers practical insight and hope for staying connected when life gets hard.


Find Lisa's books here: https://lisagrayauthor.com/books

or wherever books are sold

Connect with Lisa online at:

Author Website: https://www.lisagrayauthor.com/

Therapy Website: www.lisagraymft.com

Instagram: https://www.instagram.com/lisagraymft/

Join her Instagram page where she reviews books at https://www.instagram.com/therapybooknook/

Twitter: gray_therapy

Threads: lisagraymft

Blue Sky: @gray-therapy.bsky.social

Follow SpoonFull of Strength at:

Instagram:

⁠⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠⁠

TikTok: ⁠⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠⁠

Use code PODCAST for 20% off your entire order


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1 month ago
39 minutes 38 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
You are Not Alone: Steven’s Message of Hope

⚠️ Content Warning:
This episode discusses mental health and suicide. Listener discretion advised.

In this deeply personal episode, Steven joins Rachel to share his powerful story of finding light after living through his darkest days. After a suicide attempt, Steven began a journey of healing...one that led him to rediscover purpose, connection, and the strength to speak out for others facing similar battles.

Today, he’s using his voice to remind people struggling with mental illness and chronic conditions that they are never alone. Together, Rachel and Steven talk about the intersection of physical and mental health, what recovery truly looks like, and the courage it takes to reach out for help.

This episode is a message of hope — proof that even in the deepest pain, healing and purpose can still grow.

If you or someone you know is struggling:
📞 Call or text 988 to reach the Suicide and Crisis Lifeline (available 24/7, free, and confidential).
💬 Text HOME to 741741 to connect with the Crisis Text Line anytime.

Follow Steven's journey on

Instagram https://www.instagram.com/steven_chiari_warrior/TikTok: https://www.tiktok.com/@steven_chiari_warrior?lang=en

Follow SpoonFull of Strength at:

Instagram:

⁠⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠⁠

TikTok: ⁠⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠⁠

Use code PODCAST for 20% off your entire order



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1 month ago
50 minutes 3 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
You Snooze You Win: The Power of Sleep with Chronic Illness

Living with chronic illness often means living with fatigue. Yet sleep, the very thing our bodies crave most, can feel impossible to find. In this episode, Rachel sits down with Dr. Sarah Silverman, a Stanford-trained sleep psychologist and insomnia expert, to unpack the science and struggle of sleep when you’re chronically ill.

Dr. Sarah has been published in reputable scientific journals, including Sleep Health: Journal of the National Sleep Foundation, and her expertise has been featured in major outlets such as HuffPost, MindBodyGreen, Women’s Health, Prevention, Well+Good, and Oprah Daily. She currently serves as a sleep expert on the Sleep Foundation’s Health & Community Advisory Board and believes that quality sleep isn’t a luxury...it’s a basic human need.

Together, Rachel and Dr. Sarah explore:

Why sleep is often disrupted in chronic illness

How circadian rhythms affect healing and energy

The impact of medications on sleep quality

Small, realistic changes that can improve rest

Why rest isn’t lazy, it’s essential


If you’ve ever felt “tired of being tired,” this conversation will leave you feeling validated, understood, and equipped with tools to finally reclaim your rest, one spoon at a time.


To find a local sleep psychologist or insomnia / CBT-I specialist near you, visit the Society of Behavioral Sleep Medicine (SBSM)  and search based on your state.  https://behavioralsleep.org/index.php/united-states-sbsm-members
To find a local sleep medicine physician or sleep center near you, visit the American Academy of Sleep Medicine (AASM)  and search with your zip code. 

https://sleepeducation.org/sleep-center/
Follow Dr Sarah here:

Instagram: https://www.instagram.com/drsarahsleep/

Through her website" https://www.drsarahsleep.com/


Follow SpoonFull of Strength at:

Instagram:

⁠⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠⁠

TikTok: ⁠⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠⁠SpoonFullofStrength.etsy.com⁠⁠⁠

Use code PODCAST for 20% off your entire order





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2 months ago
44 minutes 55 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Longevity Healing: Living Healthier, Not Just Longer

In this episode, Rachel sits down with returning guest Karissa Fox to talk about what healing really looks like when you live with chronic illness.

Together, they explore what longevity healing means for people with chronic conditions. From holistic and naturopathic medicine to nutrition, supplements, and daily habits that support the body over time.

They also get honest about the cost and accessibility of alternative care, the difference between managing and truly healing, and how to find balance between what’s realistic and what’s ideal.

Rachel and Karissa share their own experiences with trial and error, self-advocacy, and learning that healing isn’t always about doing more , sometimes it’s about doing less with intention.

If you’ve ever wondered how to support your body without breaking the bank or burning out, this episode will remind you that healing is personal. And it doesn’t have to look perfect to be powerful.


Follow Karissa at

Instagram: ⁠ https://www.instagram.com/chronically_karissa/

Karissa has shared some of her resources, which can be found here: https://benable.com/ChronicallyKarissa


Follow SpoonFull of Strength at:

Instagram:

⁠⁠https://www.instagram.com/spoonfullofstrength/⁠⁠

TikTok: ⁠⁠https://www.tiktok.com/@spoonfull.of.strength⁠⁠


Shop SpoonFull's Etsy shop at: ⁠⁠SpoonFullofStrength.etsy.com⁠⁠

Use code PODCAST for 20% off your entire order





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2 months ago
39 minutes 59 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
From Grief to Growth: Navigating Life After Diagnosis

In this Spoonie Insight episode of The SpoonFull Show, Rachel sits down with Brenda Snow , a 30-year Multiple Sclerosis patient, author, and founder of Snow Companies, a global leader in patient engagement. Brenda turned her personal journey with chronic illness into a movement that empowers patients and caregivers to share their stories and find strength through connection.

Together, they talk about the ups and downs of life with chronic illness, not just at diagnosis, but in the years that follow. Brenda opens up about the stages of grief that come with illness, the importance of caring for the caregiver, and how our relationships and identities evolve over time.

Her new book, Diagnosed: The Essential Guide to Navigating the Patient Journey, offers a powerful roadmap for patients and care partners alike — showing that while illness may change your life, it doesn’t have to define it.

Buy Brenda's book here: https://www.amazon.com/Diagnosed-Essential-Navigating-Patients-Journey/dp/B0DMGMH67C/ref=sr_1_1?crid=39HZGFRJ7IQMJ&dib=eyJ2IjoiMSJ9.ai1nxlCsHYohsKEZ2rqmWQ.qH5qDgnT8iQlK0gD5e1gHQnFhNYPqpxnctv7Qs4tKXk&dib_tag=se&keywords=brenda+snow+book+diagnosed&qid=1760134761&sprefix=%2Caps%2C161&sr=8-1

Follow Brenda at

Email: Brenda@BrendaSnow.com

Instagram: https://www.instagram.com/brendalynettesnow/

Follow SpoonFull of Strength at:

Instagram:

⁠https://www.instagram.com/spoonfullofstrength/⁠

TikTok: ⁠https://www.tiktok.com/@spoonfull.of.strength⁠


Shop SpoonFull's Etsy shop at: ⁠SpoonFullofStrength.etsy.com⁠

Use code PODCAST for 20% off your entire order


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2 months ago
41 minutes 28 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Too Young to Feel this Old

In this Spoonie Chats episode, Rachel is joined by Spoonie co-host Em, who had a stroke at just 26 years old and is now living with lasting deficits on one side of her body.

Together, we dive into what it’s like to face mobility challenges at a young age — from the self-consciousness of using handicap parking, to the importance of setting boundaries for your health, to the daily realities of living in a body that feels “older” than you are. This is an open and relatable conversation about resilience, self-acceptance, and the strength it takes to keep moving forward.


Listen to Em's story on The SpoonFull of Strengths podcast here: https://open.spotify.com/episode/6njNL5XgwGRTqO1u8EgO1B?si=Q0VtwEYzSwiSZoLah_9u6Q

Follow Em's journey on Instagram at: https://www.instagram.com/ems.stroke.of.lightning/


Follow SpoonFull of Strength at:

Instagram:

https://www.instagram.com/spoonfullofstrength/

TikTok: https://www.tiktok.com/@spoonfull.of.strength


Shop SpoonFull's Etsy shop at: SpoonFullofStrength.etsy.com

Use code PODCAST for 20% off your entire order


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2 months ago
38 minutes 30 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Preview Episode: New Name, Same Spoons

Welcome to The SpoonFull Show! Formerly known as SpoonFull of Strength, this podcast is here to share real Spoonie stories and insights for life with chronic illness.

In this preview episode, I re-introduce myself, give you a glimpse of what to expect this season, and tease some exciting episodes ahead. Whether you’re a longtime listener or brand new, I’m so glad you’re here—let’s take this journey together, one spoon at a time.


Follow SpoonFull of Strength on Instagram at: https://www.instagram.com/spoonfullofstrength/


And, on Tik-Tok at: https://www.tiktok.com/@spoonfull.of.strength


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2 months ago
11 minutes 3 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Announcement of The SpoonFull Show!

✨ Big news, Spoonies! ✨ The SpoonFull Show is back with a brand-new season. Formerly SpoonFull of Strength, the show is hosted by Rachel, who lives with MS and Type 1 Diabetes. This season brings even more real Spoonie stories, powerful conversations, and expert insights about chronic illness, advocacy, and hope. Hit follow so you don’t miss an episode!

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3 months ago
58 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP. 66: The Spoonie Balance / Sarah, Advocate and Mom of Meadow and Her Heart Defects

It’s the final episode of Season 4 of SpoonFull of Strength! In this two-part episode, Rachel opens solo while Tina is out sick to share an honest conversation about finding the Spoonie Balance. She dives into the hard choices that come with putting your health first, the guilt and fear of letting others down, and the moment she realized she needed to step back from certain commitments.

In part two, Rachel and Tina sit down with Sarah Michelle Boes, MSN, APRN, FNP-BC—Founder of Sarah Michelle NP Reviews, Chief Nursing Officer at Blueprint Test Prep, and board member for Conquering CHD—to talk about her powerful journey of advocacy. Sarah shares how she received the life-changing news of her daughter Meadow’s heart condition just weeks before giving birth, and how that experience fuels her mission to improve care for children with congenital heart defects.

Stay tuned until the end of the episode for a special announcement that will change SpoonFull forever. Thank you for joining us throughout Season 4—we’re so grateful for this community and can’t wait to share even more inspiring stories and conversations going forward!


Follow Sarah and Meadow on Instagram at : https://www.instagram.com/sarahmichellenp/

Find more information on Sarah visit:

https://sarahmichelleboes.com/


Come join SpoonFull of Strength's Instagram page here:⁠https://www.instagram.com/spoonfullofstrength/⁠


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here:

⁠⁠⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠⁠⁠


Get 15% off at Spicey by clicking here:⁠⁠⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠


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3 months ago
51 minutes 43 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP 65: How do you explain a "Good Day"? / Zach (Paraplegic Spoonie / Advocate /Athlete)

In this two-part episode of SpoonFull of Strength, Rachel and Tina dive into the tricky question: “How do you explain a good day without invalidating your illness?” Together, they share how they navigate the everyday “How are you?” question, what boundaries they’ve learned to set, and how to protect their energy when others aren’t truly invested in the answer.

In Part 2, we welcome Zach, a Spoonie and paraplegic whose life was forever changed after a motor vehicle accident. Zach walks us through the crash that reshaped his world and how he has transformed that experience into powerful advocacy for disability rights, accessible healthcare, and gun violence prevention. Beyond advocacy, Zach is a passionate adaptive athlete—competing in wheelchair tennis and football—and proving that sports can be both healing and empowering. His story is one of resilience, honesty, and turning pain into purpose.

This episode is a reminder that chronic illness and disability don’t erase joy, strength, or purpose—they redefine it. We hope Zach’s story inspires you to find your own voice, honor your limits, and know that your journey matters, both on the hard days and the good ones.


Follow Zach's story here:

https://www.instagram.com/thestrategicparaplegic/


Come join SpoonFull of Strength's Instagram page here:https://www.instagram.com/spoonfullofstrength/


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here:

⁠⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠⁠


Get 15% off at Spicey by clicking here:⁠⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠

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4 months ago
1 hour 6 minutes 30 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP 64: Can you "Kick Sick"? With Amy Kurtz, Bestselling Author of Kicking Sick: Your Go-To Guide for Thriving with Chronic Health Conditions

In this two-part episode of the SpoonFull Podcast, Rachel and Tina dive into Kicking Sick: Your Go-To Guide for Thriving with Chronic Illness by Amy Kurtz—a book we loved so much, we just had to share our favorite takeaways with you.


In Part 1, we discuss the moments, lessons, and insights from the book that resonated with us the most. This book covers everything from self care, to being your own advocate, from food to social situations. We can' t recommend this book enough.


Then, in Part 2, we welcome Amy herself—patient advocate, health coach, and bestselling author—who has lived with autoimmune disorders, thyroid disease, and late-stage Lyme. She shares her personal journey, the inspiration behind Kicking Sick, and the empowering message she hopes every reader carries with them.


Buy Kicking Sick here:

https://www.amazon.com/Kicking-Sick-Go--Thriving-Conditions/dp/1622036654

Follow Amy here:

https://amykurtz.com/

https://www.instagram.com/_amykurtz/


Don't forget to follow SpoonFull of Strength on Instagram here:

https://www.instagram.com/spoonfullofstrength/


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here:

⁠⁠⁠https://www.instagram.com/getspicey/⁠⁠⁠


Get 15% off at Spicey by clicking here:⁠⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠⁠




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4 months ago
1 hour 13 minutes 46 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Ep 63: What's the Greatest Gift You've Given your Body / Jenny (FAP, Short Bowel)

Join our SpoonFull Instagram page at: https://www.instagram.com/spoonfullofstrength/

In Part 1 of this uplifting episode, Rachel and Tina dive into the question, “What’s the greatest gift you’ve given your body?” From the power of positive self-talk to the importance of setting boundaries, they explore how grace, affirmations, and compassion can help us better care for ourselves—especially while living with chronic illness.

In Part 2, we welcome rare disease advocate Jenny, the founder of Life’s a Polyp. Jenny shares her powerful journey with Familial Adenomatous Polyposis (FAP), Short Bowel Syndrome, and medical PTSD after surviving eight surgeries and living with an ileostomy for six years. She opens up about how she turned her pain into purpose—creating a children’s book, launching the NORD FAP Research Fund, and raising awareness through her advocacy shop. Her story is one of fierce resilience, community-building, and hope.


Go to https://www.lifesapolyp.com/ to find Jenny's podcast, shop and important information on Life's a Polyp.

Check out Jenny's children's book, Life's a Polyp: with Zeke and Katie here: https://www.amazon.com/dp/1946512559?ref=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&ref_=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&social_share=cm_sw_r_ffobk_cso_cp_apin_dp_QJATKJX3VHCW983TVQDF&bestFormat=true&titleSource=avft-a&previewDoh=1

Follow Jenny on Instagram at: https://www.instagram.com/lifesapolyp/


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here:

⁠⁠https://www.instagram.com/getspicey/⁠⁠


Get 15% off at Spicey by clicking here:⁠⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠⁠


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4 months ago
1 hour 13 minutes 10 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP 62: Is your Mental Health being Ignored? / Laura (Chronic UTI-Let's Talk UTI)

In part 1 of this episode, Rachel and Tina dive into the question: Is your mental health being ignored? They share personal experiences, discuss the emotional toll of chronic illness, and explore what needs to change when it comes to integrating mental and physical healthcare.

In part 2, we’re joined by Laura, founder of Let’s Talk UTI and the UTI Health Alliance, the only U.S.-based advocacy organization focused on urinary tract infections. Laura shares her nearly 60-year journey with chronic UTIs and how her lived experience inspired her to create a platform to educate, empower, and drive change. She talks about the power of speaking up, finding support through social media, and the urgent need to improve how UTIs are diagnosed and treated.


Get more information on UTIs at:

https://www.letstalkuti.org/


Find Laura on Instagram at:

https://www.instagram.com/letstalkuti/

And Facebook at:

https://www.facebook.com/letstalkuti


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here:

⁠https://www.instagram.com/getspicey/⁠
Get 15% off at Spicey by clicking here:
⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠

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4 months ago
1 hour 7 minutes 58 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP 61: Who's Really in Charge of your Care? / Claire (Vestibular and Hemiplegic Migraines)

In Part 1 of this episode, Rachel and Tina dive into the question: Who's really in charge of your medical care? From fighting with insurance companies to chasing down referrals and managing a pile of appointments, we explore what it means to be the CEO of your own health—whether you wanted the job or not. We also share tips for advocating for yourself in a system that doesn’t always make it easy.

In Part 2, we welcome Claire, a passionate advocate living with vestibular and hemiplegic migraine. Claire shares her long road to diagnosis, how her symptoms challenged expectations—especially since she doesn’t get headaches—and what she wishes more people understood about migraine. Her story is honest, powerful, and proof that chronic illness is never one-size-fits-all.

Follow Claire's journey on Instagram at:

https://www.instagram.com/the_migraine_leopard/


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: ⁠https://www.instagram.com/getspicey/⁠


Get 15% off at Spicey by clicking here:

⁠⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠⁠


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5 months ago
1 hour 8 minutes 21 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
EP. 60: What makes you feel seen? / Jessica Graham (Author of Being (Sick) Enough

In this two-part episode of SpoonFull of Strength, Rachel and Tina dive into a powerful question: “What makes you feel seen in a world that often doesn’t get it?” Part 1 explores the reality of invisible illness—what it feels like to constantly prove your pain, the emotional toll of feeling unseen, and personal stories that so many in our Spoonie community will relate to.

In Part 2, we welcome Jessica Graham—a certified somatic trauma resolution guide, Brainspotting practitioner, meditation teacher, and author of Good Sex: Getting Off Without Checking Out and Being (Sick) Enough: Thoughts on Invisible Illness, Childhood Trauma, and Living Well When Surviving Is Hard. Jess specializes in complex PTSD and post-traumatic growth and has taught internationally at places like the Esalen Institute. Their work has been featured in Women’s Health, GOOP, Bustle, and more, and they appear in The Great Courses’ Masters of Mindfulness. In addition to their therapeutic work, Jess is an award-winning actor, filmmaker, and acting teacher, bringing creativity and deep compassion to everything they do.

This episode is for anyone who has ever wondered, Am I sick enough? and for everyone craving validation in a world that doesn’t always understand invisible pain.

Buy Jessica's book here: Use code SPOONFULL for 25% off and free shipping!⁠https://www.northatlanticbooks.com/shop/being-sick-enough/

Follow Jessica here:

https://www.instagram.com/jessicaclarkgraham/

https://www.tiktok.com/@jessicaclarkgraham

https://substack.com/@jessicagraham


This episode is sponsored by Spicey,  Clean heat therapy for every body in pain ❤️‍🔥Find them on Instagram here: https://www.instagram.com/getspicey/


Get 15% off at Spicey by clicking here:

⁠https://getspicey.com/products/heating-patch-for-cramps-pain-patch-for-soreness-universal-heat-patch-pack?ref=SPOONFULLOFSTRENGTH⁠

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5 months ago
1 hour 10 minutes 57 seconds

The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
The SpoonFull Show (formerly SpoonFull of Strength) is hosted by Rachel, who has lived with Multiple Sclerosis for 10 years and Type 1 Diabetes for more than 25. Each episode blends heartfelt Spoonie conversations with insightful expert interviews, exploring what it really means to live with chronic illness. From the struggles of diagnosis and the mental load of daily symptoms, to the victories of advocacy, resilience, and finding joy, this podcast offers community, encouragement, and the reminder that even a spoonful of strength can carry you through.