What does it take to raise a brilliant boy with autism in a world full of stigma, systemic hurdles, and cultural misconceptions? In this episode, childcare lawyer and super-mum Deborah Otubambo shares her 21-year journey of advocacy, resilience, and hope whilst raising a son with autism.
From the early days of confusion and cultural stigma to navigating the complex world of EHCPs and education, Deborah shares what it really takes to advocate for your child against systemic hurdles. She talks candidly about the emotional toll, the misconceptions she faced, and how her perspective on diagnosis evolved over time. This conversation is a raw and hopeful look at resilience, community, and redefining success for families of children with special educational needs.Some notes for you:
The number of cases brought to tribunal that are successful is actually 98%: https://www.specialneedsjungle.com/55-rise-2024-send-tribunal-appeals-cost-families-incalculable/Costs can vary wildly - and unless you get legal aid then it can cost up to £20,000 to take this action.
Resources mentioned in this episode include:
https://www.ipsea.org.uk