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You've Got a Rare Friend in Me
Rare Friends 罕友
5 episodes
5 days ago

由香港罕見疾病關注小組 - Rare Friends 罕友 製作之 Podcast節目。

http://www.facebook.com/rarefriendhk2017

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All content for You've Got a Rare Friend in Me is the property of Rare Friends 罕友 and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

由香港罕見疾病關注小組 - Rare Friends 罕友 製作之 Podcast節目。

http://www.facebook.com/rarefriendhk2017

Powered by Firstory Hosting

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Health & Fitness
Society & Culture,
Leisure,
Documentary
Episodes (5/5)
You've Got a Rare Friend in Me
You've Got a Rare Friend in Me - 脊髓肌肉萎縮症

休息了兩個月,今集請到脊髓肌肉萎縮症的患者吉吉的家長Wenus(吉吉媽) 及 Brian (吉吉爸)上來分享他們的故事。
http://www.facebook.com/rarefriendhk2017

留言告訴我你對這一集的想法: https://open.firstory.me/user/cl5p4wdq602l1010jgg2beo8k/comments



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2 years ago
1 hour 2 minutes

You've Got a Rare Friend in Me
You've Got a Rare Friend in Me - 罕見病群體義工服務隊 Rare GoGo

今期You've Got a Rare Friend in Me,請來由香港中文大學學生組成之罕見病群體義工服務隊 Rare GoGo的成員Chloe 及Jason 上來分享他們的工作。

Facebook Page: https://www.facebook.com/RarefriendHK2017

Rare GoGo罕見病群體學生服務隊:

https://www.facebook.com/Rare-GoGo%E7%BD%95%E8%A6%8B%E7%97%85%E7%BE%A4%E9%AB%94%E5%AD%B8%E7%94%9F%E6%9C%8D%E5%8B%99%E9%9A%8A-107439051012054/

https://www.instagram.com/raregogo.raredisease/

留言告訴我你對這一集的想法: https://open.firstory.me/user/cl5p4wdq602l1010jgg2beo8k/comments



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3 years ago
51 minutes

You've Got a Rare Friend in Me
You've Got a Rare Friend in Me - 妥瑞症

You've Got a Rare Friend in Me 第四回請到妥瑞症患者 Brian 上來分享他的故事。

Facebook: https://www.facebook.com/RarefriendHK2017

留言告訴我你對這一集的想法: https://open.firstory.me/user/cl5p4wdq602l1010jgg2beo8k/comments



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3 years ago
42 minutes

You've Got a Rare Friend in Me
You've Got a Rare Friend in Me - 天使綜合症 2

You've Got a Rare Friends in Me 第3回的第2節,繼續請來天使綜合症家庭 - 印印一家分享他們的故事。

Facebook: https://www.facebook.com/RarefriendHK2017

留言告訴我你對這一集的想法: https://open.firstory.me/user/cl5p4wdq602l1010jgg2beo8k/comments



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3 years ago
31 minutes

You've Got a Rare Friend in Me
You've Got a Rare Friend in Me - 天使綜合症

You've got a Rare Friends in Me 第3回移師至Podcast 跟大家見面。今次請來Rare Friends 好朋友,印印一家上來跟我們分享他們的生活。


留言告訴我你對這一集的想法: https://open.firstory.me/user/cl5p4wdq602l1010jgg2beo8k/comments

Facebook: https://www.facebook.com/RarefriendHK2017/



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3 years ago
38 minutes

You've Got a Rare Friend in Me

由香港罕見疾病關注小組 - Rare Friends 罕友 製作之 Podcast節目。

http://www.facebook.com/rarefriendhk2017

Powered by Firstory Hosting