This week’s podcast episode didn't go entirely to plan so we decided to have a shorter relaxed end-of-year chat with quite a few laughs and festive outfits (you can watch the episode on YouTube!). Make sure you listen right to the end of the episode to hear our bloopers and outtakes, they’re too good (and too embarrassing) not to share.
What we discuss:
Debbie celebrating her Nan’s 100th birthday 🥳 — including a very special card from the King and Queen
The reality of podcast bloopers, outtakes, and why our intros take longer than the actual episode
Christmas onesies, sparkly jumpers, and making an effort (even when you’re knackered)
Sending love to those celebrating Hanukkah and to friends in Australia during a difficult time
Being very unprepared for Christmas
How hard it is to buy presents for kids and partners who “don’t want anything”
Moving house stress and a Christmas tree that’s up… but not decorated
Why New Year’s resolutions don’t really work for us anymore
Introducing our January theme: #MyPaceNotYours
How do you set goals when your body doesn’t always cooperate?
A look ahead to February, where we’ll be talking about love, friendship, and chronic illness
A huge thank you to everyone who’s listened, followed, messaged, and supported us this year
Stay connected:
We’d love to hear your thoughts for #MyPaceNotYours
Follow, rate, and review the podcast wherever you listen
Follow us on social media (and thank you for helping us grow!)
Sign up to our newsletter at inflammatoryarthritis.org for updates, research, and events
We will be back in January with new episodes (and a postponed guest!). Until then, take care of yourselves, rest when you need to, and go at your pace. 💛
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
Keywords: Darts, Fitness, Running, Mental Health, Community, Podcast, Christmas, Health Challenges, Strength Training, Autoimmune Disease
Debbie and Katy wrap up the year with a warm, funny, and reflective catch-up. Katy shares her unexpected victory at a work darts tournament and recaps her chilly final 10K of the year, complete with a painful lesson in running gear. Debbie talks about flare-ups, stress, and picking up her daughter’s cold while trying to keep everything in balance.
Together, they look back on their favourite episodes, the importance of strength training, mental health, and how hard it can be to juggle fitness with chronic illness. They also celebrate listener feedback, their growing global audience (hello Australia and Norway!), and the power of lived experience within the inflammatory arthritis community.
The hosts chat about changing Christmas party trends, from darts to aquariums, and share some exciting plans for the podcast in the new year, including new guests, new trustees, and more community-focused content.
Key Topics
Katy’s Flight Club darts triumph
Running injuries, rest, and balancing multiple sports
Debbie’s flare-ups, stress, and festive-season colds
Strength training vs endurance and why it’s hard to balance both
Reflections on mental health, vulnerability, and community support
Spotify Wrapped listener stats
Christmas party trends and alcohol habits
New podcast plans and growing the charity’s reach
Episodes Mentioned
Strength Training (with Matt)
1% Better
Sound System
You Are Not Alone (mental health deep dive)
Sex & Relationships
Our Journey Begins
Can You Keep Your Humour?
Alcohol Episode
Guest episodes with James, Rachel, Adam, and Sarah
Follow us on social media: Bluesky, Facebook, Instagram,LinkedIn and YouTube
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
James Hollens joins us on Inflammatory! to share his honest and emotional journey of living with two types of inflammatory arthritis, whilst keeping his sense of humour, it is a very funny and honest episode. He talks about the sudden joint pain that hit in his early twenties, the months of misdiagnoses, and the moment a rheumatologist finally recognised rheumatoid arthritis. At just 21, James had to face the shock, stigma, and mental toll of a lifelong diagnosis far earlier than he ever expected.
His story then takes us to China, where a new wave of intense back pain landed him in an emergency hospital and a suspected diagnosis of ankylosing spondylitis. Navigating a foreign healthcare system, language barriers, and a specialist shutdown during Chinese New Year made the experience even more daunting. Returning to the UK brought answers, faster treatment, and eventually a confirmed AS diagnosis, followed by a long recovery supported by biologics, physio, and major lifestyle shifts.
We also dive into the emotional side of chronic illness,from pandemic isolation to the mental health battles many patients face. James shares how lock-down volunteering grew into a thriving social media presence where he raises awareness, builds community, and spreads humour and honesty, including his popular “prick & pic” travel series. He closes with heartfelt advice to his younger self about shame, vulnerability, and finding support sooner.
Key Topics Covered
Early symptoms and repeated misdiagnoses
Receiving an RA diagnosis at age 21
Living abroad and a second suspected diagnosis (AS)
Navigating a foreign medical system and language barriers
Returning to the UK for answers and treatment
Recovery with biologics, physiotherapy, and lifestyle changes
Mental health challenges and pandemic isolation
How volunteering led to chronic illness advocacy online
Travelling with medication & the “prick & pic” series
Advice for his younger self:
don’t be ashamed
open up sooner
find community
care for mental & physical health
stop fighting yourself
Connect with James: Instagram: @JamesHollens
Connect With Us: Follow Inflammatory Arthritis UK and the podcast on: Instagram | BlueSky | Facebook | LinkedIn
💬 Please like, share, and comment to help us reach more people.
⭐ And don’t forget to rate and follow the podcast wherever you listen!
Coming Up
We have two more episodes before our festive break,including another special guest and our reflections on the past year—plus our favourite moments!
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
Debbie and Katy dive into the chaos, pressure, and unexpected joys of the festive season, all while managing inflammatory arthritis. From flare frustrations and frozen fingers to minimalist Christmases, Santa mishaps, school nativity seating struggles, and the great“real tree vs fake tree” debate, this episode is full of relatable laughs and honest reflections.
They explore how stress, weather, family expectations and endless December commitments can trigger symptoms and why giving yourself permission to slow down can be the best gift of all. Plus: cheese boards, mince pies, Christmas tiffins, flare-friendly cooking shortcuts, and why Debbie wants a “Be More Like Katy” t-shirt.
The hosts also share what’s coming in 2026 and invite the IA community to get involved with recipes, workplace stories, mental health tips,and New Year’s habits.
Next week: an incredible guest joins the show with a hilarious and moving story about life with RA and axial spondyloarthritis.
Topics Covered
Please do follow, rate, and share the podcast to help grow the IA community.
Website: inflammatoryarthritis.org
Find us on BlueSky, Instagram, Facebook and LinkedIn.
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
This week, Debbie and Katy dive into how a sudden UK cold snap is affecting their inflammatory arthritis and how the community is feeling it too. Debbie shares her current whole-body flare, why pacing is key, and the importance of looking after yourself when symptoms spike.
They also chat about:
How cold weather triggers stiffness and flares
Your feedback on sleep, boundaries, and slowing down
Diet confusion: flare triggers, food testing, and why diet advice can be… irritating
Exciting charity updates and new grants for 2025
Energy management, spoon theory, and putting yourself first
Heated steering wheels, hot tubs, and Diet Coke vs fizzy water
Why everyone’s IA journey is so individual
Plus: a fun quick-fire Q&A covering brain fog, flare-day outfits, stairs vs tiny buttons, pain vs fatigue, sofa vs bed, and whether they’d choose Strictly Come Dancing or I’m a Celebrity.
As Christmas approaches, the hosts talk openly about festive pressure, stress-related flares, and finding humour and community support during tough seasons.
Stay ConnectedWebsite: inflammatoryarthritis.org
Newsletter & resources: via the website
Follow us: BlueSky • Instagram • Facebook • LinkedIn
Please rate and follow the podcast—it really helps us grow!
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
In true Inflammatory! style, Debbie and Katy bring plenty of humour, honesty, and a healthy dose of real talk in this heartfelt and relatable episode. They dive into what “looking after yourself” really means when you’re living with inflammatory arthritis or any long-term condition — and spoiler alert: it’s about a lot more than bubble baths and early nights!They chat about everything from blue post-it notes and children’s times tables to deep-tissue massages, blood test bureaucracy, hospital parking nightmares, and the realities of trying to cook healthy meals when your joints won’t cooperate. The conversation circles back to the importance of self-respect, community, and remembering to put on your own oxygen mask first.
Key Takeaways:
It can mean different things, from spa days to colouring books.
Community and friendship are vital parts of health.
Listen to your body and don’t feel guilty for slowing down.
Advocate for yourself, whether with a massage therapist or the hospital system.
Health management comes with invisible costs that deserve recognition.
Find joy in the small things: origami, art therapy, and simple creativity.
Resources & Links Mentioned:
Teapot Trust – Art therapy charity supporting children and young people: teapot-trust.org
Inflammatory Arthritis UK – Resources, blogs, and stories: inflammatoryarthritis.org
Listen & Connect:
Subscribe and follow Inflammatory with Debbie & Katy wherever you get your podcasts:
Spotify | Apple Podcasts | Amazon Music | YouTube
Join the conversation:
Follow us on Instagram, Facebook, LinkedIn, and BlueSky — and share how you look after yourself.
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our persona lhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
In this week’s episode of Inflammatory with Debbie and Katy, the hosts dive into a conversation that every person living with inflammatory arthritis can relate to - what causes a flare and how to cope when it hits.
From birthday party chaos and moving-house stress to hormones, grief, and sleepless nights, Debbie and Katy share their personal experiences, insights, and practical coping strategies. They explore the “cycle of doom” when life’s stresses, fatigue, and overdoing it collide, and discuss how to break that pattern with self-compassion, rest, and a realistic approach to living well with inflammatory arthritis.
This honest, funny, and heartfelt chat reminds listeners that while flares are tough, they don’t define you, and you can still live a full, joyful life beyond diagnosis.
Key takeaways:
Stress is a major trigger: even positive stress like birthdays or weddings can cause a flare.
Sleep is crucial: fatigue and poor rest often make symptoms worse.
Hormones, grief, and big life events can all affect inflammation levels.
Listen to your body: rest when you need to, without guilt.
Don’t blame yourself: flares sometimes happen for no clear reason.
Empowerment over management: learn from each flare rather than just “managing” it.
Reach out for support: use your rheumatology team’s helpline, and don’t delay if pain persists.
Resources & Links:
Follow Inflammatory with Debbie and Katy on
Instagram | Facebook | LinkedIn | Bluesky
If this episode resonated with you, please rate, follow, and share the podcast. Your support helps others living with inflammatory arthritis discover they’re not alone and that life goes on, even through the flares.
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
Final chance to fill Inflammatory! consultation here
Trustee Week Special – Behind the Scenes of Running aCharity
This week, Debbie and Katy celebrate Trustee Week (3–7November) with an honest chat about what it’s really like to start and run a charity from scratch.
They share the story behind Inflammatory Arthritis UK,from that first message and business plan to launching a national charity, all while managing work, health, and life (plus a bit of Halloween chaos and a laser quest birthday party!).
Hear them discuss:
What being a trustee really involves
The challenges of governance, funding, and planning
Balancing health and volunteering with inflammatory arthritis
Why time is the best currency you can give
How you can get involved as a trustee or volunteer
If you’ve ever thought about volunteering, joining a board,or just wondered how charities really work behind the scenes, this episode’sfor you.
📧 Get in touch: info@inflammatoryarthritis.org
Learn more: inflammatoryarthritis.org
Memorable Quotes
“When you’re on a board, you’re all equal. It’s about havingthe confidence to use your voice.” – Debbie
“The best thing anyone can give is their time. That’s thebest currency.” – Katy
“We might not have big funds, but we have creativity,purpose, and lived experience and that’s powerful.” – Debbie
Follow and share to help us grow the community 💫
Instagram | Facebook | LinkedIn | Bluesky → @Inflammarthritis
Next week: What Triggers a Flare? 🔥
🎧 Keywords:
trustee week, charity, volunteering, nonprofit, chronic illness, arthritis,inflammatory arthritis, autoimmune disease, health advocacy, patient voice,trustees, governance, lived experience, charity leadership, giving back,community support, health podcast, UK charities
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. Thepodcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
As autumn turns to winter, Debbie and Katy chat about the ups and downs of seasonal change, the darker mornings, aching joints, and staying motivated when it’s cold outside.
They share personal stories, warmth hacks, and practical tips for managing energy, mood, and inflammation through the colder months all with their usual humour and honesty.
Topics Covered
Seasonal changes & mood: Why darker days can make us sluggish and how to boost your energy and mindset.
Seasonal Affective Disorder (SAD): Recognizing symptoms and easy lifestyle tips to help combat the “winter blues.”
Keeping warm:
The ultimate indoor washing setup (dehumidifier + fan + heating)
Fleece-lined trousers, heat packs, and hand warmers
Joint pain & cold weather: Are aching joints in winter real or psychological? Debbie and Katy discuss their experiences.
Motivation & movement:
Scheduling exercise to beat the “it’s too cold” excuse
Indoor exercise options (from Pilates YouTube videos to bean-can workouts)
How to make movement fit your day and your mood
Staying cozy:
Hot water bottles, electric blankets, and recliner sofas
Katy’s love of her dry robe (even if she’s not a wild swimmer!)
Comfort foods and slow-cooker meals — soup, shepherd’s pie, and warm lunches
Self-compassion: Letting go of guilt for not meeting unrealistic exercise targets. Listen to your body — and rest when you need to.
Key Takeaways
Links:
📲 Follow us:
Instagram | Facebook | BlueSky | LinkedIn📺 Watch the podcast on YouTube⭐ Rate, follow, and subscribe wherever you listen to your podcasts
“Just listen to your body. If you want to wrap up in a blanket and watch a film - do it. There’s nothing wrong with cozy.” Debbie
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· Formore information, head to https://inflammatoryarthritis.org/
Guest: Matt Brown, Physiotherapist & Strength Coach
In this week’s episode, Debbie and Katy chat with Matt Brown, a physiotherapist and strength coach, about how strength training can support people living with inflammatory arthritis (IA).
Matt shares his journey from personal training to physiotherapy and offers practical advice for building strength safely, even on flare days. They bust common myths, discuss how movement benefits both body and mind, and explore the science behind why something is always better than nothing.
Key Takeaways:
Exercise & IA: How people with inflammatory arthritis can safely engage in strength training, and why it can improve overall health, bone density, and confidence.
Bridging the Gap: The disconnect between personal trainers and healthcare professionals when it comes to chronic conditions — and how education and awareness can close that gap.
Practical Advice:
Start small — even 5–10 minutes of activity can help.
Focus on something over nothing — every bit of movement matters.
Modify exercises to suit your symptoms and energy levels.
Track your response to activity to understand your body’s patterns.
Find trusted, supportive fitness professionals who understand chronic illness.
The Mental Health Link: How movement can support mood and motivation during flares.
Systemic Benefits: Strength training not only supports joints and muscles, but also improves cardiovascular and immune health.
“Start where you are, build gradually, and know that every bit of movement makes a difference.” – Matt Brown
Connect & resources:
Instagram: @mattbrown_physio
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/
In this listener-led episode, Debbie and Katy answer yourmost-asked questions about living with inflammatory arthritis. From managing pain and fatigue to navigating treatment options like DMARDs and biologics, they share their real-life experiences, the challenges, the lessons, and the small wins that make a big difference.
The pair also catch up on exciting developments in arthritisresearch and patient initiatives, including Debbie’s work on a new Versus Arthritis-funded consortium and Katy’s role in the Parkrun Practice Initiative, which uses social prescribing to support community wellbeing.
This is an honest, relatable, and hopeful conversation foranyone affected by inflammatory arthritis, whether you’re newly diagnosed, supporting someone who is, or looking for practical ways to live well day to day.
Key Questions Discussed
Key TakeawayManaging inflammatory arthritis looks different for everyone, progress takes time, and “well-managed” doesn’t always mean pain-free. With the right support, community, and mindset, it’s possible to live a fulfilling, confident life while managing chronic illness.
Resources Mentioned
Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
· For more information, head to https://inflammatoryarthritis.org/
In this episode of Inflammatory!, Debbie and Katydive into an honest conversation about alcohol and its impact on life with inflammatory arthritis (IA). From social pressures to medication side effects, cultural habits to personal choices, they explore how drinking affects their health, fatigue, and flare-ups and how difficult it can be to balanceself-discipline with wanting a “normal” social life. They also reflect on conversations with their children about alcohol, the changing attitudes among younger generations, and practical realities like what to wear, how late to stay out, and the fatigue that comes the next day.
What You’ll Hear in This Episode:
Join the Conversation:
How does alcohol affect your IA symptoms, flares, or fatigue? Do you drink socially, at home, or not at all? We’d love to hear your experience, share your tips, thoughts, or stories with us on social media or by completing our survey.
Watch & Connect:
Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
In this week’s episode of Inflammatory with Debbie andKaty, the hosts open up about one of the most difficult and often invisible aspects of living with inflammatory arthritis: pain. From describing what the pain actually feels like, to coping mechanisms that work (and don’t work), they share their personal journeys with honesty, humour, and resilience.
This conversation covers everything from the daily frustrations of flare-ups, to how pain affects mood, fatigue, relationships, and even simple tasks like cooking dinner or holding hands. Debbie and Katy also discuss practical tools like wrist supports, heat/cold packs, breathing exercises, and distraction techniques that help them push through the tough days.
Key Topics in This Episode
Takeaways
📲 Connect with Us
Follow Inflammatory with Debbie and Katy on: Facebook,Instagram, Blue Sky, LinkedIn, YouTube
Sign up to our regular newsletter at inflammatoryarthritis.org
Living with Rheumatoid Arthritis: Sarah’s Journey from Denial to Empowerment
In this episode of Inflammatory!, Debbie and Katy sitdown with Sarah Yorke, who shares her deeply personal journey with rheumatoid arthritis (RA), from the confusion of her first symptoms to the challenges of getting a diagnosis, coping with denial, and ultimately finding strategies that help her live well with this unpredictable condition.
Sarah opens up about:
Her story is one of resilience, honesty, and hope, and a reminder that while everyone’s journey with RA is different, no one has to face it alone
Guest:
Follow Sarah Yorke on Instagram at @arthritisfit_by_sarahfor more on her health, fitness, and RA journey.
Links & Resources:
Take our Inflammatory Survey to shape future episodes InflammatoryArthritis.orgWatch episodes on YouTube
Follow us on Facebook, Instagram, Blue Sky & LinkedIn
Subscribe to our newsletter at InflammatoryArthritis.org🎧 Don’t forget to rate, follow, and share the podcast to help us reach more people living with inflammatory arthritis.
We need your help. Please do take a few minutes tocomplete our anonymous survey, to help us grow and improve the podcast.
Please fill out the survey here: https://tinyurl.com/mtr7fvz5
Please note: All responses are anonymous. Aggregateresults may be shared with funders, trusts, and partner organisations to highlight the need for Inflammatory! and ensure its sustainability.
🎙️ Episode 26: Is Sitting Bad for Our Health?
This week Debbie and Katy are back after the summer break to tackle a big question: how bad is sitting for our health, especially with inflammatory arthritis?
They first discuss their summers, exam results, holidays andhaving a bout of Covid thrown into the mix. They then cover:
Resources & Links
Stay Connected
Follow Inflammatory Arthritis UK on Instagram,Bluesky, Facebook & LinkedIn.
Sign up for the newsletter at InflammatoryArthritis.org.
Disclaimer: The podcast is for informational purposes onlyand is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
In this bonus summer episode, Debbie and Katy catch up while one of them enjoys a holiday in Crete, navigating the intense heat, a lingering cold, and the added challenges of inflammatory arthritis and being immunosuppressed.
They explore the realities of travelling with a chronic condition, from heightened sun sensitivity due to medication, to the constant need for sun protection, shade, and mindful pacing to balance relaxation with health needs.
Their conversation also delves into family dynamics, making thoughtful food choices on all-inclusive holidays, and the value of self-compassion when things don’t go as planned. They reflect on the delicate balance between denial and mindfulness when living with a long-term condition, and the importance of giving yourself permission to rest.
The episode closes with a gentle reminder to be kind to yourself, savour the moment, and stay connected through their website and social media.
Stay Connected:
Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this heartfelt episode, Debbie and Katy reflect on recent personal experiences, listener feedback, and plans for the future as they wrap up the podcast season for a short summer break.
Topics Discussed:
Stay Connected:
Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.
Until Next Time:
This isn’t goodbye, just a “see you soon.” The podcast will return in September with new stories, guests, and conversations to continue supporting those living with inflammatory arthritis.
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
This week, Katy and Debbie offer a raw and honest conversation about what it really means to live with inflammatory arthritis (IA). As both are currently experiencing flares, Katy facing increasing symptoms and Debbie managing spinal arthritis and severe pelvic pain, they speak from a place of lived experience, bringing warmth, truth, and relatability to the challenges of daily life with IA.
They reflect on last week’s inspiring interview with Adam Newton (listen here), whose swift diagnosis contrasts starkly with the long, frustrating journey many, especially women, face. They highlight this disparity by referencing Rachell Smith’s powerful story (Listen here), where it took over 13 years to receive a diagnosis, underscoring how gender bias and symptom dismissal remain pressing issues in rheumatology.
Katy and Debbie also speak openly about the emotional toll of IA and the importance of a good support network to help ease the isolation.
A central theme of the episode is IAUK’s mission, grounded in the four pillars of AREA: Advocacy, Research, Education, and Awareness. The hosts explain how these values shape every aspect of the charity’s work, from elevating patient voices and building innovative research partnerships, to creating educational content like this podcast and spreading awareness about the realities of life with IA.
They also explore the broader context in which IA exists, acknowledging that many people live with overlapping conditions such as fibromyalgia or chronic fatigue. Katy and Debbie call for a more joined-up, compassionate healthcare approach that sees the whole person, not just a diagnosis.
Finally, they invite listeners to share their own stories and experiences, reinforcing the belief that every voice matters. Through speaking out, connecting with others, and challenging misconceptions, the IA community can grow stronger and together, push for the change and recognition they deserve.
Links:
· Research paper on weather and IA
· Please donate to our podcast appeal
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.
In this powerful episode, personal trainer and father of three daughters (all under the age of 5), Adam Newton shares his journey of being diagnosed with inflammatory arthritis while pursuing extreme endurance goals, including training for a 100-mile ultramarathon. His symptoms began with psoriasis and escalated following a 24-hour charity cycling event. Although quickly referred to rheumatology and diagnosed, Adam initially downplayed the seriousness of the condition, pushing through pain and keeping it mostly to himself.
He opens up about the emotional and physical adjustments he’s had to make, from stepping back from sports like football and tennis to managing family life during painful flare-ups. Adam was diagnosed when his second daughter was just a few months old, and he speaks candidly about the crucial support he's received from his wife throughout his journey. He also reflects on how he talks to his daughters about his condition in an age-appropriate way, and how he eventually opened up to friends, helping them understand the reality of living with arthritis.
Through trial and error, Adam has found ways to cope, emphasising the power of good nutrition, gentle movement, and a consistent routine. His transparency with personal training clients has helped build stronger relationships and foster empathy.
Adam also hosts the podcast Through the Eyes of Adversity, where he speaks with others about how movement supports both physical and mental health through life’s challenges. He encourages anyone facing a new diagnosis to seek support, do their own research, and know they’re not alone.
Find Adam on Instagram at @adam_c_newton, and listen to his podcast on YouTube and Spotify.
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Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
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In this episode, Debbie and Katy explore the powerful role of volunteering, especially for people living with inflammatory arthritis and chronic conditions, to coincide with volunteer’s week. The hosts share personal stories, practical advice, and inspiration on how giving back, even in small ways, can help you reclaim purpose and build a sense of community.
They stress that meaningful volunteering is about using your strengths and passions, not about forced or physically demanding tasks e.g. clearing grave yards! Through anecdotes and humour, they illustrate the many forms volunteering can take, from peer support to admin roles, and emphasize the impact it can have on both the individual and the wider community.
They also share that Inflammatory Arthritis UK is looking for volunteers and whether you're an expert in social media, admin, fundraising, grant writers, or would like to join the board of trustees or the expert advisory board, there's a place for you. If you would like to volunteer for IAUK, please do email info@inflammatoryarthritis.org
🔑 What You'll Hear in This Episode:
📣 Get Involved:
We’re actively looking for volunteers to support Inflammatory Arthritis UK. Whether you can give one hour a month or a little more, your skills and lived experience are invaluable.
✅ Interested in volunteering, becoming a trustee, or joining our advisory group?
📩 Contact us via: inflammatoryarthritis.org
💬 Or reach out on: Facebook | Instagram | LinkedIn | BlueSky
For more information about being a trustee and what it entails please see here.
📝 Quote of the Episode:
“The best way to find yourself is to lose yourself in the service of others.” – Mahatma Gandhi
📬 Stay Connected:
Sign up to our newsletter for updates, guest announcements, and more at inflammatoryarthritis.org.
🎧 See you next week for another inspiring guest episode!
Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.
For more information, head to https://inflammatoryarthritis.org/
Hosted on Acast. See acast.com/privacy for more information.