This podcast series delves into the journey of securing long-term, independent housing solutions for individuals with intellectual and developmental disabilities (I/DD).
Through a mix of expert insights and personal interviews, each episode explores the unique challenges and triumphs of navigating the housing process. Listeners will discover various housing models, funding options, and the crucial role of a person’s circle of support in creating sustainable homes.
Brought to you by NYHRC.
Hosted on Acast. See acast.com/privacy for more information.
This podcast series delves into the journey of securing long-term, independent housing solutions for individuals with intellectual and developmental disabilities (I/DD).
Through a mix of expert insights and personal interviews, each episode explores the unique challenges and triumphs of navigating the housing process. Listeners will discover various housing models, funding options, and the crucial role of a person’s circle of support in creating sustainable homes.
Brought to you by NYHRC.
Hosted on Acast. See acast.com/privacy for more information.
Chris Liuzzo: As the host of this impactful podcast series sponsored by the New York Alliance for Inclusion and Innovation, and funded by the New York State Council on Developmental Disabilities, Chris Liuzzo brings insightful conversations to the fore. Throughout the series, Chris engages with a variety of guests, including people who receive and provide supports, family members, administrators, and thought leaders, all while exploring the nuances of person-centered planning, work, and way of life.
Episode Summary:
In the concluding episode of a transformative podcast series on person-centered planning, host Chris Liuzzo delves into the essence of what person-centered work truly embodies. Sponsored by the New York Alliance for Inclusion and Innovation and enriched by the voices of twelve diverse guests from various locales, this episode pays tribute to the legacy of John O'Brien, a pioneer in person-centered planning. In this summary episode, Chris reflects on the intrinsic connection between person-centered planning, the civil rights movement, and social justice, emphasizing its roots and significance in fostering inclusive communities.
Chris outlines the crucial themes that have emerged throughout the series, focusing on the processes used in person-centered planning to develop authentic stories and contributions for individuals with disabilities. Among the vital components discussed are the clarity of purpose in person-centered work, the mystique surrounding the planning process, and how it truly aims to reveal and elevate personal stories that have been overshadowed by systemic assessments and technological constraints. Through engaging storytelling and expert insights, Chris articulates how this approach is less about technical processes and more about deep listening and fostering a community of belonging.
Key Takeaways:
Notable Quotes:
Resources:
Discover the profound impact of person-centered planning by listening to the full episode. Stay tuned for more engaging content from the series and continue to explore the complexities and beauty of person-centered work.
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Baturu Mboge serves as the Vice President for Learning and Development at the Care Coordination Alliance of New York. With an intrinsic passion for person-centered planning, Baturu leads its Person Centered Engagement initiative, guiding a vast organization almost spanning statewide. He strives to foster values-driven, person-centered practices aimed at nurturing beloved communities through innovative care management strategies.
Episode Summary:
In this episode, Chris Liuzzo hosts Baturu Mboge to delve into person-centered planning and its impact on care management. Baturu explains the transition towards person-centered engagemen,an initiative to transform care management practices across a nearly statewide organization. The discussion transitions into an exploration of how purpose and intentionality help foster meaningful change for both the caregivers and those they support.
Baturu elaborates on how person-centered engagement is more than just a framework; it's a transformative journey aimed at enhancing community involvement and citizenship among individuals. By shifting the focus from deficits to gifts and from isolation to community connection, this initiative nurtures valuable contributions from all individuals, thereby building beloved communities as envisioned by Martin Luther King Jr. The discussion underlines how organizations like Lifeplan and Advanced Care Alliance (ACA) of New York leverage deeper listening and purposeful engagement to redefine the narrative and empower care managers.
Key Takeaways:
Resources:
To get the full picture of Baturu Mboge's inspiring take on person-centered planning and its significance in community involvement, be sure to listen to the complete episode. Stay tuned for more enriching discussions and insights from our series.
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Danyetta Najoli is the founder and principal consultant of the Najoli Learning Group. She has an illustrious career as an author and thought leader in the fields of person-centered planning and cultural humility. Danyetta spent 12 years at Starfire, a Cincinnati-based organization, as a senior community builder and learning network associate. Her commitment to fostering environments that empower individuals shines through in her work, emphasizing the importance of cultural humility in human services.
Episode Summary:
In this episode of the podcast series about person-centered planning, host Chris Liuzzo is joined by Danyetta Najoli, an expert in cultural humility and person-centered work. The discussion delves into the intersection between cultural humility and person-centeredness, exploring how these concepts can transform relationships and experiences within human services.
Cultural humility emerges as a profound theme throughout the conversation. Najoli explains this concept using the framework established by Doctors Tervalon and Murray-Garcia. It's described as a lifelong commitment to self-evaluation, personal critique, and addressing power imbalances in relationships, especially pertinent in service-oriented fields like those supporting individuals with intellectual disabilities. Najoli emphasizes that cultural humility shifts the expert into a learner role, fostering deeper, mutually beneficial partnerships. The conversation touches on the challenges of traditional human services, where prevailing practices might inadvertently overlook critical aspects of individual identity — a gap cultural humility seeks to bridge.
The episode elaborates on the dynamics of cultural competence, proficiency, and humility through a vivid analogy of a house with a hole in the roof, highlighting that knowing what, why, and how to fix it contrasts with having the desire to actually do it. Liuzzo and Najoli further explore how person-centered work is enriched by joy, challenging conventional practices that might focus more on control rather than holistic individual support. This dialogue encourages listeners to engage in self-reflective practices, challenge traditional paradigms, and foster environments infused with humility, understanding, and genuine care.
Key Takeaways:
Cultural Humility Defined: A commitment to lifelong learning, self-reflection, and addressing power imbalances in service relationships.
Person-Centered Planning: More than methodologies and practices, it requires a sincere desire to foster understanding, empathy, and mutual respect.
Importance of Joy: Recognizing and integrating elements that bring joy in individuals' lives can transform person-centered work.
Nuclear Soft Skill: Cultural humility is described as a nuclear soft skill, emphasizing its capacity to fundamentally improve interactions and service delivery.
Cultural Artifacts: Identifying cultural artifacts that are significant to individuals can lead to more inclusive and rich person-centered practices.
Notable Quotes:
"Cultural humility is a lifelong commitment to things like self-evaluation and personal critique."
"We are practicing cultural humility when we turn the expert into a learner."
"If they miss out on what brings the person joy, then they miss out on joy."
"Cultural humility is not a tool; it's a way of being."
"We are willing to check ourselves or to self critique when it comes to how we interact with the person."
Resources:
Najoli Learning Group
Starfire, Cincinnati
Keystone Institute
The conversation with Danyetta Najoli reveals vital insights into cultural humility's role in enhancing person-centered services.
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BJ Stasio is a prominent figure in the field of developmental disabilities. He has served as the president of the New York State Self Advocacy Association. Currently, he is a peer specialist at the New York State Office for Persons with Developmental Disabilities. Known for his advocacy, training roles, and support for voting rights, BJ contributes significantly to nurturing a person-centered culture within organizations. As someone who receives support himself, he offers a unique perspective on systems concerning person-centeredness. BJ is also a writer and speaker, maintaining an active presence through his website, bjstasio.com.
Episode Summary:
In this episode of the person-centered podcast series BJ and host Chris Liuzzo focus on understanding the genuine essence of person-centered planning.
BJ sheds light on the constraints that current systems impose, particularly through things like dropdown boxes in life plans, which he argues limit exploratory choices and person-centered approaches. BJ emphasizes the importance of going beyond these limitations to truly embrace person-centeredness, which involves understanding and supporting the individual beyond system-defined boxes. The podcast also touches upon the importance of having a supportive circle of trust and the risks of reverting to outdated, segregate practices if current systems do not evolve.
Key Takeaways:
Person-centered work should extend beyond system-driven constraints like dropdown boxes, advocating for individualized and expansive planning.
BJ Stasio highlights the danger of tokenism and how genuine person-centeredness involves exploring what is possible outside predefined boxes.
Circles of support—which BJ prefers to call circles of trust—play a crucial role in challenging individuals to grow by offering genuine feedback and support.
The risk of system regression to segregationist practices is real, highlighting the importance of advocacy and storytelling to promote systemic change.
BJ encapsulates self-reflection and progress with the mantra "I am enough," emphasizing his commitment to moving advocacy forward.
Notable Quotes:
"My life doesn't fit in a drop down box, nor do I being so large and I don't fit in the dropdown box."
"Person centered work is about exploring what more is possible."
"Why does the system even talk about dignity of risk when they don't allow you to experience it?"
"Systems are built to say no first and not think about the possibilities of saying yes, because no is safe."
"Build your circle of trust and don't believe in you."
Resources:
BJ Stasio's Website: bjstasio.com
Listeners are encouraged to tune in to the full episode to gain deeper insights into developing truly person-centered systems and to stay updated with more episodes from this enlightening podcast series.
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Mike Green specializes in community development, embodying decades of experience. Currently based in Denver, Mike’s professional journey began in small business, where he managed three operations before shifting to social work. Influenced by his daughter Annie's experiences, he developed a passion for fostering inclusive communities. He collaborated with the notable John McKnight on asset-based community development models, emphasizing the importance of community and relationships. Mike, now 78, shares his expertise globally, promoting the integration of service and community life.
Episode Summary:
In this insightful episode sponsored by the New York Alliance for Inclusion and Innovation, podcast host Chris Liuzzo engages with community development expert Mike Green. The discussion, rich with personal anecdotes and professional insights, delves into the heart of person-centered planning and community integration. Through his journey from small business owner to social work and community advocacy, Mike shares how personal experiences, particularly with his daughter Annie, shaped his approach to community building.
Mike Green explores the concept of Asset-Based Community Development (ABCD), illustrating how genuine community connections can bring about meaningful change. He emphasizes that true power lies in relationships, not in meticulously crafted plans, and shares key strategies for building inclusive communities that welcome diverse contributions. Through poignant stories and thought-provoking observations, the episode underscores how person-centered work is mirrored in successful community integration, pivotal for fostering greater inclusivity. Mike closes with practical advice for families seeking to navigate and improve community interactions.
Key Takeaways:
Notable Quotes:
Resources:
To dive deeper into how person-centered work can truly transform communities and individual lives, listen to this engaging episode. Stay tuned for more insightful discussions on person-centeredness from our podcast series!
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Carol Blessing is an expert person-centered planning and citizen-centered leadership. Until recently, she was a long-time employee at the Yang-Tan Institute on Employment and Disability at Cornell University. While there, she developed and implemented the Citizen Centered Leadership Development Course, and she has been a fervent advocate for social justice, equity, and inclusivity for people with intellectual and developmental disabilities for nearly 40 years. Carol is recognized for her impactful teaching and dedication to preserving the integrity and intention of person-centered planning.
Episode Summary:
Join host Chris Liuzzo as he delves into the heart of person-centered planning with Carol Blessing on the latest episode of this enlightening podcast series. Sponsored by the New York Alliance for Inclusion and Innovation, this episode sheds light on the core principles of person-centered work and the broader concept of citizenship as a universally inclusive idea.
In this episode, Carol shares her insights from decades of experience in the field, discussing how person-centered planning has evolved over time. She emphasizes the original intent behind these methodologies, which focus on integrating individuals with disabilities into communities as citizens with equal access to opportunities. Carol also shares her thoughts on how person-centered work was co-opted over time, becoming more about checking boxes than truly celebrating shared humanity and social justice. Highlighting voices like Beth Mount and John O'Brien, Carol focuses on reclaiming person-centered planning's roots in social justice and inclusivity.
Key Takeaways:
Notable Quotes:
Resources:
Stay tuned for more insightful episodes as the series continues to explore and deepen the conversation around person-centered planning and inclusivity. Don't miss out on the full episode for a comprehensive understanding of these vital concepts!
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Beth Gallagher is the CEO and founder of LifeWorks, a person-centered services organization based in San Diego, California. Since its inception, LifeWorks has been focused on providing person-centered support, particularly through supported living services. Gallagher is a prominent figure in advocating for person-centered planning and has co-authored a book titled "Intentional Teaming: Shifting Organizational Culture." Her work extends beyond traditional planning methods, emphasizing the cultivation of a culture that enriches both clients and staff through understanding individual gifts and fostering potential.
Episode Summary:
This episode features Beth Gallagher, CEO of LifeWorks,who provides an enlightening discussion on what person-centered planning truly involves. LifeWorks, a distinguished organization in San Diego, focuses on empowering individuals with supported living services, operating on the belief that person-centered approaches go beyond traditional planning events. This philosophy not only enhances the lives of those they support but also enriches everyone involved in the organization's reach, including the communities in which LifeWorks operates.
Gallagher explains the core principles of LifeWorks, emphasizing that person-centered planning should be a cultural ethos rather than a one-off event. This approach involves fostering a culture of respect, contribution, and maximizing the potential within every interaction LifeWorks engages in—whether with the supported individuals, their families or the employees who serve them. Gallagher elaborates on the story of Joaquin, a former state institution resident now thriving in the community due to LifeWorks' dedicated support. By sharing his remarkable transformation, Gallagher highlights the necessary commitment and the relational foundations required to support individuals authentically. This episode offers a profound insight into the realities of compassionate care and the transformative power of love and community in developmental support services.
Key Takeaways:
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Hope Leet Dittmeier is the executive director of Mattingly Edge, a nonprofit organization based in Louisville, Kentucky, that is committed to providing person-centered supports. With a focus on social justice, Hope has dedicated her career to advocating for individuals with intellectual and developmental disabilities. Her leadership at Mattingly Edge emphasizes tailored, individualized services that are rooted in values of authentic person-centered planning. Hope's work is recognized for its clarity of purpose and commitment to inclusivity.
In this episode, Chris Liuzzo talks with Hope Liet Dittmeyer about the true meaning of person-centered planning and how it is implemented at Mattingly Edge, a leading organization in Louisville, Kentucky. Hope shares insights into the challenges of working within a system that often inhibits person-centered work, and how Mattingly Edge remains dedicated to upholding its values despite these obstacles.
The conversation delves into the importance of grounding person-centered planning in social justice, emphasizing that holistic support and individualized planning go beyond clinical techniques. Hope explains how Mattingly Edge recruits justice-minded individuals who are passionate about making meaningful changes in the lives of people with disabilities. She addresses the concept of "congregation" and the importance of resisting conventional methods that group people based on disability, fostering instead environments that enhance inclusion and community integration.
Hope also highlights the significance of continuous, relationship-driven person-centered planning that evolves over time. She shares how Mattingly Edge employs innovative goal-setting strategies to explore valued opportunities for the individuals they support. Throughout the discussion, the focus remains on collaboration, trust-building, and perseverance in creating new pathways for community involvement and personal fulfillment.
Key Takeaways:
Resources:
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John O'Brien was a renowned thought leader in the field of person-centered planning and disability advocacy. With extensive experience in promoting the rights and dignity of individuals with intellectual and developmental disabilities, O'Brien contributed significantly to the conceptual and practical understanding of person-centered approaches. He is known for his deep insights into social justice and wealth in its many forms, beyond mere material success. O'Brien's work continues to inspire those committed to fostering inclusive communities and meaningful human connections.
Episode Summary:
In this insightful podcast episode, Chris Liuzzo engages with John O'Brien to uncover the multifaceted concept of real wealth, particularly in the context of person-centered work. The discussion delves into the multiple dimensions of wealth, including not just financial assets but also capabilities, networks, relationships, and spirit. These elements serve as the foundation for achieving a rich, meaningful life, particularly for individuals with intellectual and developmental disabilities.
As the conversation progresses, O'Brien sheds light on the pressing challenges facing this inclusivity effort by identifying the "enemies of real wealth." Through the lens of themes like social devaluation, individualism, and consumerism, he elaborates on these adversarial forces. O'Brien critiques the overemphasis on material wealth and individual effort, highlighting the need for interdependence and authentic human connections. This dialogue calls for awareness and mobilization against these challenges, promoting a more inclusive and supportive community infrastructure.
Key Takeaways:
Notable Quotes:
Resources:
Listen to the full episode for a profound exploration of how real wealth and person-centered planning can transform the lives of those with developmental disabilities. Stay tuned for more enlightening content and join us in our journey towards inclusivity and genuine human connection.
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John O'Brien: John O'Brien was a renowned figure in the field of disabilities, celebrated for his contributions to person-centered planning and advocacy for people with disabilities and their families. Over his 50-year career, he engaged in writing, teaching, and consulting globally. John is considered one of the pioneers of person-centered planning alongside his wife, Connie Lyle O'Brien, and colleague Beth Mount. Known for his intellect, generosity, and humor, John was deeply respected in his field.
Episode Summary:
In this insightful episode, host Chris Liuzzo converses with the late John O'Brien about the concept of person-centered work, reflecting on John's impactful career and philosophy. Recorded in May 2025, shortly before John's passing, this discussion offers profound reflections on the notions of disability, dependence, and what constitutes a "good life." John details his thoughts on "real wealth" within person-centered planning
John expands on the importance of shifting perspectives within disability services from simply providing protective oversight to forming relationships that drive shared responsibility in changing the world. He introduces the notion of "real wealth" as a framework comprising assets, capabilities, networks, relationships, and spirit. The conversation delves into the current challenges faced by the Medicaid-dependent support systems and argues for a broader understanding of wealth that includes but extends beyond material measures. John emphasizes an interdependent worldview, encouraging a focus on human flourishing, joy, and the intrinsic value of relationships and spirit in crafting fulfilling lives for people with disabilities.
Key Takeaways:
Shift in Perspective: Transition from protective service models to fostering relationships where there is shared responsibility for creating change.
Concept of Real Wealth: Emphasizes non-material dimensions of wealth, including relationships and spiritual fulfillment, beyond just financial assets.
Interdependence: Highlights the importance of acknowledging the interdependence inherent in human lives, especially evident in the experiences of people with disabilities.
Adaptive Challenges: Discusses the current and future challenges facing Medicaid and support systems, pointing out the importance of recognizing broader societal roles and impacts.
Emphasis on Human Flourishing: Advocates for a shift in dialogue from addressing basic needs to enriching lives through joy, relationships, and personal growth.
Notable Quotes:
"Together we are responsible for changing our world."
"What is it to live a good, full life?"
"Eligibility is an asset, but it's only one."
"People with intellectual disabilities are an embodied sign of human interdependence."
"We need to be conscious of our real wealth."
Resources:
New York Alliance for Inclusion and Innovation
New York State Council on Developmental Disabilities
Medicaid and Social Security Programs
For a deeper understanding of John O'Brien's ideas and to explore more on creating a person-centered world for people with disabilities, listen to the full episode. Stay tuned for more enlightening discussions in this podcast series.
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Carol Blessing is an expert in person-centered planning and inclusion. Recently retired as a Senior Extension Associate at Cornell University, heshas made significant contributions to person-centered work, notably as the author and director of Cornell's Citizen Centered Leadership course. She has collaborated with prominent figures such as John O'Brien and Beth Mount, contributing to works like "Conversations on Citizenship and Person Centered Work." Carol also co-created the person-centered planning method known as "Frameworks for Planning" with Connie Farrell. Her insights into developing community through the 5A's commitments are influential in the field of developmental disabilities.
Episode Summary:
In this episode of our podcast series on person-centered planning, host Chris Liuzzo invites Carol Blessing, an influential voice in the world of inclusion and developmental disabilities, to discuss the intricacies of person-centered planning. This engaging conversation explores the practical applications of developing community through Carol's 5A's commitments model. Listen as Carol shares her journey and elaborates on the motivation behind her influential work.
Carol Blessing delves deep into the concept of the 5A's commitments—Anchors, Allies, Assistance, Associations, and Agendas—that are vital to building community and enhancing the lives of people with disabilities. Coupled with the influence of John and Connie Lyle- O'Brien's work, Carol discusses the significance of moving individuals from a consumer to a contributor role within society. The episode highlights her unique perspective on how person-centered planning can create inclusive communities that recognize and value every individual's gifts and contributions.
Key Takeaways:
Notable Quotes:
Resources:
Listeners are encouraged to immerse themselves in the full podcast episode to gain further insights and are invited to tune in regularly for more enlightening discussions in this series.
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Kirk Hinkelman is the Director of Creative Design and Wellbeing at LifeWorks, a renowned human service agency based in San Diego focused on supporting people with disabilities. Kirk has transitioned through various roles within LifeWorks, including coordinator and associate director, as he evolved both professionally and personally. His innovative role centers around creative expression and mindfulness, fostering an environment that emphasizes inner conditions for personal and organizational growth. Kirk is a certified mindfulness meditation teacher, passionately integrating these practices into his work to facilitate well-being for both the teams he leads and the individuals they support.
Episode Summary:
In this enlightening episode, host Chris Liuzzo and Kirk Hinkelman discuss the inner conditions of persons engaged in person-centered planning and their impact on the process. They explore how one’s mindfulness and personal alignment impact the ability to develop relationship and engage in deep listening, the heart of person-centered planning.
Kirk's emphasizes the intersection of finding one's authentic core and assisting others on their journeys towards achieving a life of purpose and alignment. This dialogue unpacks the common challenges faced within the service system and the transformative potential of mindfulness and inner work.
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Embark on a journey of mindful transformation by listening to this engaging episode. Discover how aligning personal and professional selves can revolutionize the way we support individuals with disabilities. Stay tuned for more episodes that continue to challenge and inspire perspectives in person-centered planning.
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Jack Pearpoint: Jack , along with Lynda Kahn, is a co-director of Inclusion Press International, based in Toronto, Canada. He is a renowned consultant and innovator in the field of person-centered planning and a founding director of the Marsha Forest Center With years of world-wide experience in developmental disabilities and inclusive practices, Jack has become a thought leader and influential voice in fostering environments that honor individual stories and choices. His work focuses on unlocking the potential within individuals through creative and collaborative approaches, such as graphic facilitation and storytelling. For 16 years, he served as the Director of Canada’s oldest literary organization, Frontier College.
Chris Liuzzo: Chris Liuzzo serves as a consultant to the New York Alliance for Inclusion and Innovation. With a strong commitment to person-centered planning, Chris advocates for creating supportive ecosystems that empower individuals through collaboration and innovation. He hosts insightful conversations with experts and thought leaders in the field, engaging deeply with topics related to inclusion and personal narratives.
Episode Summary:
This episode of the podcast series focuses on the vital theme of "person-centered planning," as expertly discussed by host Chris Liuzzo and guest Jack Pearpoint. Sponsored by the New York Alliance for Inclusion and Innovation and funded by the New York State Council on Developmental Disabilities, the series aims to explore the essence of person-centeredness, the significance of storytelling, and the power of imagery in unlocking potential. Jack Pearpoint shares his unique insights on how stories can reveal untapped capacities within individuals, emphasizing the need to make the "invisible visible."
Throughout the conversation, Jack discusses how the human mind is often limited by rigid scientific approaches and how embracing storytelling and graphic facilitation can lead to deeper connections and understanding. He stresses the importance of listening without biases and allowing individuals to express themselves in their own ways, thus putting them in charge of their own narratives. Person-centered planning is posited as a form of deep listening that transcends traditional methodologies, as Jack illustrates with his experiences and philosophy of using simple doodles to elicit and visualize someone's personal story. This approach not only fosters communication but also builds trust and empowers individuals to take charge of their lives.
Key Takeaways:
Person-centered planning revolves around the practice of deep listening and its ability to unlock the hidden stories within individuals.
Visual tools such as doodling and graphic facilitation can transform the storytelling process by making abstract thoughts visible and tangible.
The traditional Western mindset often restricts imaginative expression; person-centered practices strive to overcome these limitations.
Empowering individuals by involving them in the visualization of their narratives can create environments of trust and safety.
Encouraging individuals to take charge in telling and revising their stories contributes to more authentic and impactful personal planning.
Notable Quotes:
"Our minds have been colonized… the dominant part of our brains work in images." – Jack Pearpoint
"We think and we dream in imagery… stories are the key." – Jack Pearpoint
"It's not about art, it's art light. We're not worried about being Monet." – Chris Liuzzo
"The real task… is to unleash those hidden capacities." – Jack Pearpoint
"Person-centered planning is at its core about deep listening." – Chris Liuzzo
Resources:
New York Alliance for Inclusion and Innovation
New York State Council on Developmental Disabilities
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Lynda Kahn: Lynda Kahn is a former commissioner for the state of Rhode Island’s Department of Behavioral Healthcare, Developmental Disabilities, and Hospitals, where she served from the early 2000s to 2005. With a background deeply rooted in person-centered planning, she is recognized for her advocacy and innovative approaches to disability services and supports. Kahn has worked closely with notable figures in the field, including John O'Brien and Connie Lyle O'Brien, and has been influenced by their work on the five valued experiences and service accomplishment framework. Her distinguished career is marked by her commitment to collaborative, person-centered practices and her role as a facilitator in planning for individuals with disabilities.
Episode Summary:
In this enlightening episode, Chris Liuzzo hosts a compelling discussion with Lynda Kahn, exploring the heart of person-centered planning. As someone who has held influential roles and championed disability rights, Kahn offers a unique perspective on fostering collaboration and recognizing the intrinsic value of each person. Her background as the leader of Rhode Island’s developmental disabilities service system, where she focused on harnessing personal gifts and ensuring conversations are productive and inclusive, forms the backbone of this conversation.
Steeped in the philosophy of person-centered work, Kahn reflects on her tenure as a director and her dedication to promoting facilitation methods that genuinely encapsulate individuals' aspirations and dreams. Throughout the episode, she shares insights on implementing practices like PATH, MAPS, and personal futures planning, shedding light on the difference between mandated service planning and voluntary imaginative planning. This conversation invites listeners to rethink traditional hierarchies in organizational settings and inspires them to envision a future rooted in dialogue and empathetic understanding.
Key Takeaways:
Influence through Collaboration: Kahn highlights the importance of having a facilitative role where collaboration, rather than authority, drives progress in person-centered work.
Conversational Leadership: Person-centered planning involves fostering genuine dialogue, understanding people's dreams, and working collectively toward common goals.
Qualities of Effective Facilitation: An impactful leader should possess a strong moral compass, respect for participant contributions, and strive for an inclusive, personable interaction style.
Voluntary Planning vs. Mandatory Compliance: Genuine person-centered planning should be a consensual process, not a regulatory imposition, allowing people to truly express their aspirations.
Gift Recognition: Identifying and celebrating the unique skills and strengths of each person involved is crucial to successful person-centered planning.
Notable Quotes:
"I learned that nominally seeming to be in charge really meant an extraordinary amount of collaborative work with people."
"It's willed commitments, not requirements."
"This isn't quantum physics, it's simplicity of outcomes."
"Having a moral compass and wanting to be in conversation with people and thinking we can figure this out when we find ourselves disagreeing."
"I wanted to have conversations directly with people."
Resources:
New York Alliance for Inclusion and Innovation
John O'Brien’s work on conversational leadership
PATH, MAPS, and personal futures planning methodologies
New York State Council on Developmental Disabilities
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Lynda Kahn (along with Jack Pearpoint) is a co-director of Inclusion Press International in Toronto, Canada, an organization committed to promoting inclusion and innovation globally. Lynda has an extensive background, having served as the executive director of the Division of Developmental Disabilities in Rhode Island, akin to the role of a state commissioner. She has also been the president of the National Association of State Directors of Developmental Disabilities Services (NASDDS), bringing decades of experience in fostering person-centered practices. She and Jack Pearpoint work to support person-centered planning across the globe, promoting inclusion and creating meaningful, person-centered plans.
Episode Summary:
In this episode of our podcast series on person-centered planning and inclusion, host Chris Liuzzo is joined by distinguished guests Lynda Kahn and Jack Pearpoint. Lynda and Jack bring their wealth of experience as co-directors of Inclusion Press International to discuss the nuances of person-centeredness, its implications and the profound role it plays in planning for individuals with developmental disabilities. This insightful conversation sheds light on the foundational aspects of person-centered work, providing listeners with a deep understanding of how to create environments, both physical and internal, that are conducive to meaningful engagement and innovation.
Lynda Kahn elaborates on the importance of being present, holding curiosity, and embracing uncertainty when engaging with individuals or teams in person-centered work. She highlights how our internal conditions influence the quality of interactions and outcomes. Lynda emphasizes the need to quiet the "voice of judgment" and nurture an open environment where people’s true needs and aspirations can be effectively communicated and understood. The episode also delves into the significance of the physical space in facilitating effective communication and breaking down hierarchies, turning traditional meeting setups into more intimate, engaging environments.
Key Takeaways:
Person-centered work requires being present, holding curiosity, and embracing uncertainty.
The inner condition of the intervener is crucial in ensuring quality outcomes in person-centered planning.
Creating a conducive physical environment is vital, as it influences people's ability to engage and communicate effectively.
Quieting the "voice of judgment" can enhance one’s capacity to listen deeply and respond appropriately.
The arrangement of meeting spaces, such as circles instead of boardrooms, fosters open dialogue and inclusion.
Notable Quotes:
"Being present and curious about the people or teams is essential to a person-centered approach." – Lynda Kahn.
"The inner condition of the intervener has everything to do with the quality of the outcome." – Lynda Kahn.
"There's an energy field present with a group which is vital for effective interaction." – Lynda Kahn.
"Most often, any form of a circle is critical for folks being able to see one another." – Lynda Kahn.
"It is really a privilege to be able to be of service in the work of person-centered planning." – Lynda Kahn.
Inclusion Press International: inclusion.com - A publishing house supporting works on inclusion and innovation.
NASDDS: The National Association of State Directors of Developmental Disabilities Services.
Presencing Institute: An organization offering tools and methods for profound change in business, society, and self.
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Dr. Beth Mount is a pioneer in the field of person-centered planning, known for her innovative approaches to supporting people with disabilities. With over 50 years of dedication, she has created and implemented "Personal Futures Planning," a methodology that emphasizes individualized planning and systemic change. Dr. Mount has been a leading figure in transforming how organizations and systems interact with individuals, making a significant impact in New York and beyond. She has collaborated with various organizations and remains a prominent voice in advocating for community inclusion and organizational reform.
Episode Summary:
In this thought-provoking episode of the podcast series, host Chris Liuzzo invites Dr. Beth Mount to discuss the intricacies of person-centered planning. The conversation explores the fundamental differences between what Dr. Mount refers to as "Person Centered Planning Type 1" and "Type 2," shedding light on how systemic change is vital to empowering individuals with disabilities. Sponsored by the New York Alliance for Inclusion and Innovation and funded by the New York State Council on Developmental Disabilities, the podcast aims to bring forward transformative approaches to inclusion.
Throughout the episode, Dr. Mount elaborates on the necessity of innovation within organizations to truly embrace person-centered work. Using examples from her extensive experience, she underscores the importance of organizational commitment to fostering environments where not just the individuals, but the entire system evolves to support new possibilities. Offering a fresh perspective, other crucial themes include the role of community engagement and the curious, sometimes clever, ways in which resources can be re-imagined and optimized to enhance personal futures. Dr. Mount encourages leveraging the "unexpected treasure troves" within local communities to further the cause of person-centered planning.
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Dr. Beth Mount is a renowned leader in the field of person-centered planning. Based in New York City, she created Personal Futures Planning for individuals with disabilities. Dr. Mount is an accomplished artist, author, and one of the foundational inventors of person-centered planning. Her work is influenced by Social Role valorization and she has created pathways for individuals with disabilities to play valued social roles, such as employment. Her dedication extends to restoring the quality of person-centered spaces through deep listening and conversation.
Episode Summary:
In this engaging episode, host Chris Liuzzo interviews Dr. Beth Mount, a pioneer in person-centered planning, to delve into the history and future of person-centered work. Sponsored by the New York Alliance for Inclusion and Innovation, the episode navigates the origins of person-centered planning from the 1980s and its crucial role in social justice movements. The conversation emphasizes creating valued roles for individuals with disabilities and reimagining supportive environments.
Dr. Beth Mount shares compelling ideas on how person-centered planning has evolved and highlights the importance of quality, life-giving spaces during the planning process. By focusing on purposeful and deep listening, the conversation unfolds how genuine transformation occurs, and why it's critical to hold spaces that encourage growth over mere completion of tasks. Blending insights from Cornel West with personal anecdotes, Dr. Mount and Chris Liuzzo explore how disrupting old systems can lead to a more just and inclusive society, filled with creativity and passion.
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Chester Finn is a seasoned advocate and community leader known for his proactive approach to disability rights. With a rich history in advocacy, Chester has built extensive networks to promote inclusivity within and beyond the disability community. A musician and a community activist, Chester is an influential figure in connecting diverse groups through shared interests and mutual understanding.
Episode Summary:
In this enlightening episode of the Housing Journey podcast, host BJ Stasio is joined by Chester Finn, a prominent advocate and community liaison. The conversation delves into the art of building networks beyond the disability community, emphasizing the importance of advocating, understanding, and integrating with the broader society. BJ and Chester share personal anecdotes, offering listeners a glimpse into their journey of empowerment, inclusivity, and resilience.
The discussion kicks off with Chester Finn outlining the challenges and triumphs faced while seeking accessible housing and forming support networks. Chester highlights the significance of family support and online research in navigating the housing landscape. The episode progresses to explore broader concepts of advocacy, emphasizing the power of dialogue and understanding. Chester and BJ discuss the value of community events and social interactions in breaking down barriers, empowering individuals, and fostering a sense of belonging. Whether it's through attending concerts, engaging in conversations, or leveraging community resources, listeners are encouraged to step out, connect, and be active participants in their communities.
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For more insightful conversations and to learn more about the intertwined journeys of advocacy, community, and personal development, make sure to listen to the full episode. Stay tuned for more enriching content from the Housing Journey podcast series.
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BJ Stasio is a distinguished disability rights advocate and activist known for his direct involvement in driving systemic change for individuals with disabilities. As a "respectful agitator," BJ has dedicated himself to fostering inclusivity and support systems that empower those with disabilities. He's not just a self-advocate but someone who has curated conversations that lead to impactful enhancements in the community. BJ's work revolves around the principle of transforming perceived disadvantages into strengths by emphasizing humanity and connectivity within support networks.
Carol Napierski is part of the New York Alliance for Inclusion & Innovation, an organization dedicated to promoting inclusion opportunities and innovative solutions. With her extensive background, Carol offers significant insights into creating supportive communities and developing natural, reciprocal relationships.
Episode Summary:
In this insightful episode of "A Housing Journey," hosted by the New York Housing Resource Center, BJ Stasio engages in a thought-provoking discussion with Carol Napierski on establishing and nurturing natural supports for people with disabilities. The conversation delves into the heart of what natural support means, contrasting it with paid support systems, and exploring BJ's personal experiences and definitions that illustrate the transformative power of these relationships.
BJ introduces the concept of natural supports as "trusted safety nets" that fill in when paid support is unavailable. He emphasizes the unique, unfiltered interactions he enjoys with his natural supports compared to structured engagements with professional aids. Throughout the conversation, BJ and Carol discuss methods to foster and sustain these vital connections, highlighting the importance of mutual respect, active listening, and personal investment in relationship cultivation. This approach underscores the core theme of the episode: redefining support systems in a way that removes labels and enhances human experience and interaction.
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BJ Stasio
BJ Stasio is a dedicated advocate and host of the Housing Journey podcast. He has extensive experience working with services like the Office for People With Developmental Disabilities (OPWDD) and the Department of Health (DoH), facilitating personal care and mental health support. Known for his activism, BJ is deeply engaged in forming and working with circles of support to aid individuals with disabilities.
Carol Napierski
Carol Napierski serves with the New York Alliance for Inclusion Innovation. Her work focuses on fostering inclusive practices and supporting persons with disabilities through diverse initiatives and discussions, such as those highlighted in her appearance on this podcast.
Episode Summary:
Discover the profound impact of creating a circle of support in this insightful episode of the Housing Journey podcast, hosted by BJ Stasio. Join BJ and Carol Napierski from the New York Alliance for Inclusion Innovation, as they discuss the importance of having trusted individuals in your life who guide and assist you in decision-making and navigating life's challenges. Learn how BJ cultivates his circle of support and the lifelong value it represents.
BJ Stasio shares his innovative approach to building a "circle of support," emphasizing the network's role in providing guidance, accountability, and familial bonds. The discussion centers around selecting trusted members who offer diverse perspectives, aiding BJ in managing his advocacy efforts and personal goals. At the heart of the conversation is the belief that everyone should build a supportive network, no matter the duration of each member's involvement—aptly referred to as a "season" by BJ. This ensures that the right support is always accessible when most needed for life decisions, whether related to housing, services, or personal growth pathways.
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