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Long Covid Podcast
Jackie Baxter
201 episodes
1 day ago
Creativity doesn’t just reflect our lives; it reshapes them when everything else feels fixed. I close the year by handing the mic to artists, writers, and makers whose work was forged in the long shadow of Long Covid & ME/CFS —and whose voices light the way forward. If you’ve been searching for proof that small creative acts matter, this collection is your sign. If a line, chord, or colour stayed with you, let me know which moment moved you most. If you'd like to be part of n...
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Health & Fitness
Medicine,
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Creativity doesn’t just reflect our lives; it reshapes them when everything else feels fixed. I close the year by handing the mic to artists, writers, and makers whose work was forged in the long shadow of Long Covid & ME/CFS —and whose voices light the way forward. If you’ve been searching for proof that small creative acts matter, this collection is your sign. If a line, chord, or colour stayed with you, let me know which moment moved you most. If you'd like to be part of n...
Show more...
Health & Fitness
Medicine,
Science
Episodes (20/201)
Long Covid Podcast
199 - Creativity 2025 - A Tapestry of Expression
Creativity doesn’t just reflect our lives; it reshapes them when everything else feels fixed. I close the year by handing the mic to artists, writers, and makers whose work was forged in the long shadow of Long Covid & ME/CFS —and whose voices light the way forward. If you’ve been searching for proof that small creative acts matter, this collection is your sign. If a line, chord, or colour stayed with you, let me know which moment moved you most. If you'd like to be part of n...
Show more...
3 weeks ago
48 minutes

Long Covid Podcast
198 - Lighting Candles, Not Waiting for Light Bulbs: Practical Belief-Building Techniques
We go from theory to practice on beliefs and recovery, building a daily framework that protects mindset, reduces flare spirals, and turns small wins into lasting change. Practical tools include proof journaling, identity shifts, nervous system regulation, and curating what you let in. • building a symptom and activity proof journal • reframing setbacks as feedback not failure • identity-based habits to support healing • managing physiology first with breath • countering nocebo and fear narra...
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4 weeks ago
55 minutes

Long Covid Podcast
197 - More Than Mindset: The Crucial Role of Belief in Healing
We explore how belief shapes behaviour, attention, and recovery in Long Covid and ME/CFS, separating grounded acceptance from resignation and linking science to daily choices. Stories, evidence, and small wins show why consistency and self‑compassion matter more than intensity. • defining belief as evidence‑based stance that drives action • antibiotics, diabetes, and stroke rehab as clear analogies • neuroplasticity explained in plain terms • acceptance for now versus resignation forever • h...
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1 month ago
44 minutes

Long Covid Podcast
196 - Cellular Recharge: Can Nicotinamide Riboside help in Long Covid Recovery?
I'm joined today by Edmarie Guzman-Velez & Rudy Tanzi as we dig into a clinical trial of nicotinamide riboside for Long Covid, why NAD matters for cellular energy, and where the results show promise for fatigue, sleep, mood, and executive function. We share what worked, what did not, and the next steps. • Overview of NAD, mitochondria, and energy in brain and immune cells • Why Covid may deplete NAD and how NR restores it • Trial design using intra-individual crossover with placebo run-i...
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1 month ago
58 minutes

Long Covid Podcast
195 - Olympic Insights on the Path to Wellness - Katie's Recovery Story
I am joined by Katie Brennan & Andrea Henkel Burke to share Katie’s Long Covid recovery, how nervous system work unlocked capacity, and why an Olympian’s playbook of pacing, breath, joint maps and cognitive drills can fit chronic illness. The theme is small, smart inputs that prevent crashes and build a stronger baseline. • early symptoms, second infection and severe brain fog • switching from push-through to deliberate pacing • vagus nerve, breath and eye movement drills • athlete minds...
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1 month ago
51 minutes

Long Covid Podcast
194 Navigating the Unknown: Ivor Clark’s Long Covid Recovery Story
We trace Ivor Clark’s Long Covid recovery from a 2023 infection and UTI to a careful return to work, highlighting the routines and supports that made progress possible. Pacing, breathwork, oxygen therapy, and a rare GP who listened shaped a steady path back to confidence. • athletic past, late-pandemic infection, UTI and antibiotics complicating onset • post-exertional malaise, normal test results, delayed Long Covid recognition • limits of early medical support, value of an advocate and lis...
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1 month ago
48 minutes

Long Covid Podcast
193 - You are the Pilot, Not the Passenger - Reclaim Agency on your Recovery Journey
In this gentle solo episode, I invite you to explore a powerful reframe: what if your recovery journey isn’t something happening to you, but something you’re quietly guiding? Through metaphors, practical support & ideas, and reflections, I explore how to reclaim agency in healing — even when the skies feel foggy. You’ll learn how to: Shift from passive to intentional with micro-agency and sensory groundingReframe inner narratives with soft, empowering languageUse breath and boundari...
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2 months ago
27 minutes

Long Covid Podcast
192 - Pacing, Connection, & Patient, Messy Progress - Kelly's Recovery Story
I talk with Kelly George about losing and rebuilding identity through Long Covid: the crashes that forced pacing, the relief of being believed, and the slow return of capacity that now lets her design a life she actually wants. Hope here isn’t vague—it’s built from activity management, nervous system care, and community that shows the way. • life before illness as active mum and professor • infection after mandates lifted and symptom escalation • debilitating fatigue, brain fog a...
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2 months ago
55 minutes

Long Covid Podcast
191 - The Viral Aftermath: A Web of Healing with Dr. Galland
This episode welcomes Dr. Leo Galland, Internal Medicine Specialist with over 40 years of experience working with complex conditions, which now includes Long Covid and of course ME/CFS. In this episode: Comprehensive exploration of Long Covid's complex natureIntroduction to the "Web of Long Covid" conceptInsights into post-viral illness from a 40-year medical perspectiveLong covid follows patterns of previous post-viral illnesses & similarities with chronic fatigue syndrome and post...
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2 months ago
57 minutes

Long Covid Podcast
190 - Dr. Google Gets an Upgrade: Can AI have a role in patient empowerment?
Technology offers unprecedented access to health information, but navigating it effectively requires understanding which tools serve our recovery and when to step away from screens. Jess from TurnTo shares insights on using AI and technology tools to support recovery from conditions like Long Covid and ME/CFS. • Different technology platforms have different agendas - social media optimizes for view time, search engines for quick clicks • Approximately 10,000 new updates emerge weekly about L...
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3 months ago
52 minutes

Long Covid Podcast
189 - When Your Brain Keeps Telling You to Buy Salami - Natalie's Recovery Story
Natalie Gould shares her journey from severe Long Covid to full recovery, revealing how nervous system regulation transformed not only her Long Covid symptoms but also pre-existing chronic conditions like psoriatic arthritis and migraines. • Life before illness included working as a CFO and living on a small farm • Initial Covid infection in July 2021 was mild but led to severe post-viral symptoms • Main symptoms included PoTS, tachycardia, severe insomnia, cognitive impairment and sound sen...
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3 months ago
53 minutes

Long Covid Podcast
188 - Moving Through the Liminal Space Between Illness and Wellness
Recovery from Long Covid & ME/CFS involves exploring ways to move forward when you're nearly there or making progress but unsure how to reach the next level. Finding your own path is essential as there isn't a one-size-fits-all approach to healing. • Jackie's recovery had 3 phases: denial & pushing through, education & strategy-building, and gentle building • Healing isn't a destination but a soft place to land—embracing the journey puts less pressure on your nervous system • Con...
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3 months ago
25 minutes

Long Covid Podcast
187 - Energy Crisis: How Your Cell's Power Plants are Hijacked
Dr. Robert Groysman returns to discuss the mechanisms behind Long Covid, focusing on mitochondrial dysfunction and its role in symptoms like fatigue and brain fog. • Dr. Groysman identifies six major mechanisms in Long Covid: dysautonomia, mitochondrial dysfunction, gut dysbiosis, endothelial dysfunction, mast cell activation syndrome, and hormone imbalance • Most Long Covid patients experience multiple mechanisms simultaneously, requiring comprehensive treatment • Mitochondria are cellular ...
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3 months ago
54 minutes

Long Covid Podcast
186 - From Bedbound to Thriving: How Jamie Overcame Long Covid
**Content warning for discussion of suicidal thoughts from around 8:45 for 2 minutes** Jamie shares her powerful journey from being bedbound with Long Covid to full recovery, offering hope and practical insights into the healing process. • Initially experiencing tachycardia, PoTS, extreme fatigue, and sensitivities to light and sound • Deteriorating to the point of being bedbound and unable to care for herself • Reaching a mental health crisis point that became a surprising turning point • D...
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4 months ago
44 minutes

Long Covid Podcast
185 - Dr Kendal Stewart - When Your Killer T-Cells Need a Vacation
Dr. Kendal Stewart shares his unique perspective on Long Covid through his background as a surgeon with training in functional medicine, neurosurgery, and cell biology. His approach examines the body as an integrated system rather than separating it into isolated specialties. • Complex conditions like Long Covid require a holistic view of the body as an interconnected system • Western medicine often silos patients into specialties based on symptoms, missing the bigger picture • T-cell weakne...
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4 months ago
50 minutes

Long Covid Podcast
184 - Brain Health Breakthrough with Dr Henry Mahncke & Dr Gitendra Uswatte
Dr. Henry Mahncke and Dr. Gitendra Uswatte share groundbreaking research on using brain plasticity principles to treat Long Covid brain fog through a comprehensive approach combining cognitive processing speed training, real-world skill practice, and personalized cognitive rehabilitation strategies. • Neuroplasticity is the brain's ability to change its structure and function through learning and experience • Brain HQ training targets cognitive processing speed to improve overall brain funct...
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5 months ago
1 hour

Long Covid Podcast
183 - Strength in Vulnerability: Theresa's Recovery Story
In this episode, Jackie is joined by Theresa Aristarco who shares her Long Covid recovery story. Theresa's journey from an active software engineer to battling long-haul COVIDNavigating complex medical challenges and invisible symptomsThe critical role of mental health in recoveryOvercoming vestibular issues and physical limitationsFinding hope and healing through physical therapy, medication, and support Episode Themes: Long COVID recoveryMental health and healingThe importance of com...
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5 months ago
52 minutes

Long Covid Podcast
182 - Finding Rest in a World That Never Stops - Karen's Recovery Story
Karen Wright from Sage Health and Wellness shares her powerful recovery story from Long COVID, offering hope and practical wisdom for those still struggling with chronic illness. • Karen was a busy NHS physiotherapist involved in developing Long COVID services before becoming ill herself in autumn 2021 • Her severe case left her unable to speak at times, care for her children, or maintain basic daily activities • Understanding and accepting true rest became fundamental to her recovery journe...
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5 months ago
46 minutes

Long Covid Podcast
181 - Dr David Putrino - The Multifaceted Approach to Long Covid Recovery
Dr. David Putrino shares his expertise on Long Covid, approaching it through the lens of comprehensive rehabilitation and personalized medicine rather than one-size-fits-all treatments. He explains how identifying the specific drivers behind common symptoms leads to more effective intervention strategies. • Rehabilitation medicine encompasses far more than exercise recovery, including energy conservation strategies, mobility aids, and psychological support • Different symptoms like fatigue c...
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6 months ago
1 hour 1 minute

Long Covid Podcast
180 - Jules Rogers - The Art of Saying No: Why Boundaries Matter in Healing
Jules Rogers returns to the podcast to discuss the essential role of boundaries in chronic illness recovery and everyday wellbeing, sharing how learning to protect our energy can be transformative. • Boundaries are conscious protections we put in place to maintain our energy and ensure we're not giving beyond what feels right • Different types include physical, emotional, material, mental, and time boundaries • Setting boundaries becomes crucial when dealing with chronic illness as a way to ...
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6 months ago
42 minutes

Long Covid Podcast
Creativity doesn’t just reflect our lives; it reshapes them when everything else feels fixed. I close the year by handing the mic to artists, writers, and makers whose work was forged in the long shadow of Long Covid & ME/CFS —and whose voices light the way forward. If you’ve been searching for proof that small creative acts matter, this collection is your sign. If a line, chord, or colour stayed with you, let me know which moment moved you most. If you'd like to be part of n...